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Semi-Custom Sex preference: Female
Likes (Max of Ten):
Cosmic Rainbows,
The ocean,
The northern lights,
pretty dragons(Not the angry scary looking kind...I'm weird),
Tribal Henna Celtic type markings,
Fun happy expressions with eyes showing.
Colorist creativity,
Naturalist markings,
Prismatic Pastels.
Wings
Dislikes (Max of Ten):
Bald
Hair that covers eyes
lots of gore, I like some for halloween themed ones but not extreme
Tentacles...
Lots of holes, empty eye sockets that type of look.
Clowns
Really scary angry looking soq





Without looking it up, what comes to mind when you hear "Moyamoya"?: sounds like a hawaiian food... >.>
What disease/illness/syndrome has affected your family the most? : Cancer. F**K cancer. It took my Grandfather, It took three friends, It's nearly taken my mother. I Hate. Cancer.
What is an Orphan Disease?: And extremely rare one that Affects
less then 200,000 of the population
heart

Semi-Custom Sex preference: Male
Likes (Max of Ten): Crystals, plants, sumi-e, naturals, lanterns, bells, winter, shadows
Dislikes (Max of Ten): wasps/bees, gore, clowns, dolls, exposed organs, bald, skintones, neon colours, clutter



Without looking it up, what comes to mind when you hear "Moyamoya"?: I never knew what it was until you posted about it on Discord.
What disease/illness/syndrome has affected your family the most? : Cancer as a few members of my family have passed away from it.
What is an Orphan Disease?: An orphan disease is one in which it affects less than 200,000 people across the nation (or one that affects 5 in 10,000 people in Europe or 7.5 in 10,000 people in the US).


Congrats on the recovery. I am glad to hear you are doing much better and wish you continual success in the future.

Ignore Gaia Broke my forum.

Semi-Custom Sex preference: Female
Likes (Max of Ten): Bones, purples, golds, skeletons, Day of the Dead, Voodoo, Autumn colors, fluffy, shadow(s), glow
Dislikes (Max of Ten): Excessive gore, entrails on the outside, bugs, clowns, obnoxious girly/neon colors





Without looking it up, what comes to mind when you hear "Moyamoya"?: A fish, like Hawaiian or Japanese.
What disease/illness/syndrome has affected your family the most? : Alzheimer's and type 1 diabetes :C
What is an Orphan Disease?: A disease that affects fewer than so many (200k or so) people nationwide.

Semi-Custom Sex preference: Female
Likes (Max of Ten): Space, henna, blood, black sclera, auras, northern lights, scars, Jupiter Ascending (vibe), smaller armor piece(s)
Dislikes (Max of Ten): eels (phobia), extreme gore, eye gore, excessive pink, neons, curly mane/tail (if applicable)





Without looking it up, what comes to mind when you hear "Moyamoya"?: Honestly it sounds like a Japanese term for some reason, and I'm not sure why. I'd previously read about it in your status updates but before that I'd never heard of it.
What disease/illness/syndrome has affected your family the most? : Right now, Alzheimer's. We're fairly certain my grandpa has it, but my grandma is still struggling to admit it, so she hasn't taken him to a doctor for a diagnosis. Several of us had to write letters to the state to have his license revoked, which was one of the most difficult things I've had to do, but it was better than the alternative of him hurting someone when his abilities to make decisions are hindered.
What is an Orphan Disease?: A disease ignored by drug companies because they're not profitable. Often these are ones that affect less than 200k people, but they can also be ones that we don't deal with a lot in developed countries, and people in developing countries can't afford the medicine, so pharmaceutical companies ignore them.

Reposted to put username

Moyamoya? Isn't that a type of Fish?

[b]Username[/b]| 1, 3, 2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Female
Likes (Max of Ten): Glowing, stars, wings, bows, hoods, cute things, nature, fantasy, crystalline, animals
Dislikes (Max of Ten): Exposed innards, demonic/occult symbols, spiders, needles, too much blood, eyeless, too spooky, tentacles

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Without looking it up, what comes to mind when you hear "Moyamoya"?: This just may be the fact these are husky Walkers, but Japanese 'Mush Mush' in Japanese comes to mind.
What disease/illness/syndrome has affected your family the most? : Heart disease or cancer, I would say
What is an Orphan Disease?: It is a condition that affects fewer than 200,000 people nationwide, at least in the United States (the number differs for different countries).

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Educate me on one of the Orphan Diseases out there

Disease Name:Autosomal dominant hyper-IgE syndrome (Or Job Syndrome)
How rare is it?: Affects fewer than 1 per million people.
Summarize what it's like: This is a syndrome that affects many different parts of the body, especially the immune system. They suffer from such things as recurrent infections, pneumonia, eczema, recurrent skin infections, issues with the bones (such as osteopenia), issues with the teeth such as baby teeth staying in past when they should), and other things. Most cases are caused by the mutation of the STAT3 gene, which has a big role in the immune system.

Please repost your forgot your username!