[OVER] What the F@#K is Moyamoya?!: A Free raffle

[mindsend]

What the F@#K is Moyamoya?!

Starts: NOW
Ends: Wednesday, October 24th, 9pm EST
Rolled: Hopefully within 24 hours of it.




1. Charmed Semi-custom Pure Canine Walker using the new Feral form!
2. Unedited Mutant Charmed Male Pure Caninewalker (Feral)
3. Unedited Mutant Charmed Female Pure Caninewalker (Feral)

2017 was hell: Sinus infections, a lime disease scare, and Hurricane Irma forcing the entire coastline of Florida, Georgia, and South Carolina to evacuate. We got back from Hurricane Irma to a ton of yard work and loads of rotten food we had to clean out. That's when it officially started.

When it started the day after doing the yard work, I went to my mom sort of Panicky, dizzy, unable to talk clearly, one side of my body not functioning right. I thought I was having a stroke, but when it was massaged away we thought "You can't massage a stroke away". So did my doctor when we talked to her about it after it had continued in spurts the days following, my mind getting muddled and muddy, though she set an appointment for the 24th with a neurologist since they could help with a pinched nerve. I never made it to that appointment, as on the 15th of October, I followed the instructions that, should it last over 30 minutes to go to the emergency room.

Turns out, my first thought was actually correct. Between the 17th of September and the 15th of October, I had suffered Six Strokes.

And they had no idea why.

The first thought was Multiple Sclerosis: About 200 new cases of MS are diagnosed each week in the United States. But it didn't look right so they dug deeper. They did scans of my brain, my heart, my kidneys, trying to find out what was wrong with me: I was a perfectly healthy 31 year old woman, When they brought a specialist to see if perhaps I had Lupis, he suggested a Cerebral angiogram.

And there, that's when I got Diagnosed with Moyamoya Disease, having had it developing over the last ten years, one side of my brain blocked 75% of the way and the other 80%. After a spinal tap proved that it wasn't being caused by some other illness, they released me on October 22nd. One year ago today.

Since then, after going to a specialist as not one of the neurologists here had even heard of it, I learned it was not the disease (Which would have required a a bypass to keep me from dying), but the Syndrome I had: I lacked the tell-tail Puff of smoke the Japanese doctors who discovered it named it after. It's called Moyamoya Syndrome because it mimics Moyamoya, a disease that affects 0.02% of the population of population, is just about as rare, but lacks many of the factors and can, sometimes, be treated purely with Medication: When a healthy young person's artery walls thicken for no apparent reason and causes them to have strokes, that is the Syndrome. Sometimes it can develop into the disease, sometime it doesn't.

Moyamoya Syndrome is an Orphan Disease.

One year later, I haven't had any more strokes, my arteries are repairing themselves with the medication, I'm thinking clearer than I have in years, I'm losing weight and living a healther lifestyle, and in the process of moving up North to where there are doctors with even more experience with my condition than the specialist three-to-four hours away here, and within an hour drive. And, within a year or two, if things keep going the way they have been I may be able to return to doing things I love, such as riding Roller Coasters and Traveling to altitudes higher than 3000 feet.

And to Celebrate, I'm giving away at LEAST three Charmed purewalkers using the new Friendly Wolf/Husky feral form. I plan on going through the list to possibly CC a few before rolling if I see some I really want to do, but no promises.  

[mindsend]

RULES And other info

• Please turn off your post styles for this raffle
  
• Fill the form in completely
  
• This counts as your October Freebie. If you've won a soquili this month, sadly you can't win this one HOWEVER, with Charming Purewalkers are no longer the rare commodity they used to be, so there will be plenty of opportunities in the future!
  
• The Semi-customs May-or-may not be mutants or edited depending on how I feel fits for the design. If you're not happy with the end result you can always find someone to give it to on a later date.
  
• If you leave a number out in preferences, it will be assumed you don't want it and reroll: Don't just say 'whatever' or anything like that as you will be passed over.
  
• Moyamoya awareness day is May 6th
  
• WANT A SECOND TICKET? Educate me on an orphan disease! It MUST be posted with the original posting for your ticket however, so no double posting.
  

ENTRY FORM
Remove the spaces in the [ code ] part of the code in the form to make the entry form work.

[align=center][color=cyan][size=18][b]Moyamoya? Isn't that a type of Fish?[/b][/size][/color][/align]


[code ] [b]Username[/b]| preferencenumbers [/ code]

[align=center][b][u]SEMI CUSTOM INFO[/u][/b][/align]
[b]Semi-Custom Sex preference:[/b]
[b]Likes (Max of Ten):[/b]
[b]Dislikes (Max of Ten):[/b]

[quote][color=white]Delete this entire quote if you're not using any images[/color]
[b]Optional: Three inspirational images[/b]
[spoiler]
[img="200"][/img] [img="200"][/img] [img="200"][/img]
[/spoiler][/quote]

[align=center][b][u]Questionaire[/u][/b][/align]

[b]Without looking it up, what comes to mind when you hear "Moyamoya"?:[/b]
[b]What disease/illness/syndrome has affected your family the most? :[/b] (Say N/A if you'd rather not talk about it or don't know - Delete this statement when filling it out)
[b]What is an Orphan Disease?:[/b]
[quote][color=white]Delete this entire quote if you're not going for the extra ticket[/color]

[align=center][u][b]OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there[b][/u][/align]

[b]Disease Name:[/b][url=Linktoinfoonit]diseasenamehere[/url]
[b]How rare is it?:[/b]
[b]Summarize what it's like:[/b][/quote]

 

[mindsend]

Running for the Doggos

Page 1

1. Chi Honda| 1,3,2
   
2. Chi Honda| 1,3,2
   
3. Rueka| 1, 3, 2
   
4. Rueka| 1, 3, 2
   
5. purrrplekitty| 1, 3 , 2
   
6. catmagick| 1,3,2
   
7. .Tortured. .Pumpkin.| 1, 3, 2
   
8. .Tortured. .Pumpkin.| 1, 3, 2
   
9. Kivras| 1, 2, 3
   
10. Kivras| 1, 2, 3
    
11. Andranis| 3, 1, 2
    
12. Andranis| 3, 1, 2
    
13. HoneyTeaTree | 1,2,3
    
14. HoneyTeaTree | 1,2,3
    
15. Fea Line| 3, Semi, 2
    
16. Fea Line| 3, Semi, 2
    
17. Odet Amo| 1, 2, 3
    
18. Odet Amo| 1, 2, 3
    
    Page 2
    
    
19. Artymus| 3, 2, 1
    
20. Artymus| 3, 2, 1
    
21. Kitsune Mistress Nyoko| 1, 3, 2
    
22. Kitsune Mistress Nyoko| 1, 3, 2
    
23. Silver Metallic Dragon| 1,3,2
    
24. Silver Metallic Dragon| 1,3,2
    
25. o-Elixir-o| 1, 2, 3
    
26. o-Elixir-o| 1, 2, 3
    
27. medigel| 1, 2, 3
    
28. medigel| 1, 2, 3
    
29. Antidia| 1,3,2
    
30. Antidia| 1,3,2
    
31. Snowbelle Thundara| 1, 2, 3
    
32. Snowbelle Thundara| 1, 2, 3
    
33. FrostyPeaches| 2, 1, 3
    
34. Fayt_of_Redemption| 1, 3, 2
    
35. Fayt_of_Redemption| 1, 3, 2
    
36. Theidren | 1, 3, 2
    
37. Theidren | 1, 3, 2
    
38. Inari Miko| 1, 3, 2
    
39. Inari Miko| 1, 3, 2
    
40. Niyaru Delacroix| 1, 3, 2
    
41. Niyaru Delacroix| 1, 3, 2
    
42. dawns_aura| 1,3,2
    
43. dawns_aura| 1,3,2
    
44. Melomar| 2, 1, 3
    
45. Melomar| 2, 1, 3
    
46. Natsuko-neko| 1, 3, 2
    
47. Natsuko-neko| 1, 3, 2
    
    Page 3
    
    
    
48. Aria Starstone| 1, 3, 2
    
49. Tara de Draiocht | 1,2,3
    
50. Tara de Draiocht | 1,2,3
    
51. Ebonrune| 1, 3, 2
    
52. Ebonrune| 1, 3, 2
    
53. Calixita| 1, 2, 3
    
54. Calixita| 1, 2, 3
    
55. SwordOfTheDarkOnes| 2.1.3
    
56. SwordOfTheDarkOnes| 2.1.3
    
57. Fuzzy Gumdrop| 1, 3, 2
    
58. Fuzzy Gumdrop| 1, 3, 2
    
59. one over three| 3,1,2
    
60. one over three| 3,1,2
    
61. Revolutionary Roniel| 1, 3, 2
    
62. Revolutionary Roniel| 1, 3, 2
    
63. Leena-chan| 1, 2, 3
    
64. Leena-chan| 1, 2, 3
    
65. mistalina13| 1, 3, 2
    
66. mistalina13| 1, 3, 2
    
67. Yeonn|1,2,3
    
68. Yeonn|1,2,3
    
    Page 4
    
    
69. Summer Raaven| 1, 3, 2
    
70. Summer Raaven| 1, 3, 2
    
71. Lerilye| 1.2.3
    
72. Lerilye| 1.2.3
    
73. moonlit-raven| 2, 3, 1
    
74. moonlit-raven| 2, 3, 1
    
75. Rita Zyon| 1, 3, 2
    
76. Rita Zyon| 1, 3, 2
    
77. [X]Natty-Chan[X]| 1, 2, 3
    
78. [X]Natty-Chan[X]| 1, 2, 3
    
79. Mameha Otome| 1, 3, 2
    
80. Mameha Otome| 1, 3, 2
    
81. Cheyriddle4| 1,2,3
    
82. ramenli| 1, 3, 2
    
83. ramenli| 1, 3, 2
    
84. SkyDragono| 1, 3, 2
    
85. SkyDragono| 1, 3, 2
    
86. Poe-tae-toee| 1. 3. 2
    
87. Poe-tae-toee| 1. 3. 2
    
    page 5
    
    
88. elfstar89| 1, 2, 3
    
89. elfstar89| 1, 2, 3
    
90. Dea and #Teddy#| 1, 3, 2
    
91. Dea and #Teddy#| 1, 3, 2
    
92. Shi Berry| 1, 2, 3
    
93. Shi Berry| 1, 2, 3
    
94. Roarie Desu| 3, 1, 2
    
95. Epine de Rose| 2, 1, 3
    
96. Epine de Rose| 2, 1, 3
    
97. Mewsings of An Angel | 1, 3, 2
    
98. Mewsings of An Angel | 1, 3, 2
    
99. whoan| 3, 1, 2
    
100. whoan| 3, 1, 2
     
101. stormflower| 1(semi), 2, 3
     
102. stormflower| 1(semi), 2, 3
     
103. Nikkichomp| 1, 3, 2
     
104. -Ghastly Demise-| 2,3,1
     
105. -Ghastly Demise-| 2,3,1
     
106. Sabin Duvert| 1, 3, 2
     
107. Sabin Duvert| 1, 3, 2
     
108. LydaLynn| 1, 2, 3
     
109. LydaLynn| 1, 2, 3
     
110. Daemongabrielle| 2,1,3
     
111. Zaikt| 1, 2, 3.
     
112. Zaikt| 1, 2, 3.
     
     page 6
     
     
     
113. Erina_Nobara| 1, 2, 3
     
114. Teigra| 1, 3, 2
     
115. Teigra| 1, 3, 2
     
116. pippi18848| 1, 2, 3
     
117. tefla| 1, 3, 2
     
118. tefla| 1, 3, 2
     
119. Malis Vitterfolk| 1 (re-roll the rest)
     
120. Malis Vitterfolk| 1 (re-roll the rest)
     
121. xKOVAKtheWOLFx | 1 3 2
     
122. Lunarflowermaiden| 1, 3, 2
     
123. Lunarflowermaiden| 1, 3, 2
     
124. Gl!tch~| 1, 3, 2
     
125. Teh Cheryl| 1, 2, 3
     
126. Teh Cheryl| 1, 2, 3
     
127. saedusk| 1, 2, 3
     
128. saedusk| 1, 2, 3
     
129. Nyx Queen of Darkness| 1, 2, 3
     
130. Nyx Queen of Darkness| 1, 2, 3
     
131. Amira Keller| 1,3,2
     
132. Mythi Red Panda| 1, 2, 3
     
     

 

[chi honda]

Moyamoya? Isn't that a type of Fish?

[b]Chi Honda[/b]| 1,3,2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Male
Likes (Max of Ten): Halloween, spooky stuff,sumi, glowing, pokemon, overwatch, colorful things, music, superheros, and fluffy things
Dislikes (Max of Ten): Tentacles.

Quote:

Delete this entire quote if you're not using any images
Optional: Three inspirational images

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Questionaire

Without looking it up, what comes to mind when you hear "Moyamoya"?: So i'm bad but for me it was like some sort of Japanese food. o-o could be i'm just hungry right now too.
What disease/illness/syndrome has affected your family the most? : PTSD. Both my mother and I.
What is an Orphan Disease?: A condition that affects fewer than 200,000 people nationwide.

Quote:

Delete this entire quote if you're not going for the extra ticket

OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there

Disease Name:ACPS2
How rare is it?: very rare like 40 documented cases so far.
Summarize what it's like:Congenital heart disease, umbilical hernia, prolonged retention of primary teeth and hypodontia may be present.

P.S. I'm sorry you have to go through all of this. I'm super glad though its getting better and I hope it all gets way better super fast for you! ^_^

Oh and thank you for this wonderful opportunity. I hope its okay to post now  

[viatorai]

Moyamoya? Isn't that a type of Fish?

[b]Kivras[/b]| Semi, 1, 2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Any! But if I MUST choose...Female!
Likes (Max of Ten):

1. Raptors
   
2. Orcs
   
3. Skulls and Bones
   
4. Stars/Space
   
5. Sumi-e
   
6. Tentacles (Inky! No suckers!)
   
7. Fluff
   
8. Creepy/Spooky
   
9. Spiders
   
10. World of Warcraft

Dislikes (Max of Ten):

1. Snakes (ball pythons ok!)
   
2. Minis
   
3. Aquatics
   
4. Bald
   
5. Saddles/Tack
   
6. Clowns
   
7. Yellow
   
8. Orange
   
9. Green
   
10. Tentacles w/Suckers

Quote:

Optional: Three inspirational images

show spoilerhide spoiler

Questionaire

Without looking it up, what comes to mind when you hear "Moyamoya"?: A type of fish, honestly. Like...a high-class, $80 a piece sushi-quality fish. (LMAO I didn't even notice the header of this form.....)
What disease/illness/syndrome has affected your family the most? : Right now? Type 2 Diabetes. My mom just got diagnosed, and I'm personally scared to go to the dr's because I don't want to be diagnosed.
What is an Orphan Disease?: I think it's a disease that affects less than 7,000 people worldwide? Basically, SUPER rare.

Quote:

OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there

Disease Name: Kabuki Syndrome [2]
How rare is it?: 1 in 32,000
Summarize what it's like: Common symptoms include mild cognitive disability, impaired growth, various types of skeletal malformations and prominent finger pads. The condition is sometimes known as Kabuki makeup syndrome, referring to the characteristic appearance of long eyelids and arched eyebrows associated with the disorder, which resembles the makeup of actors in the traditional Japanese Kabuki theatre. The cause is genetic and the syndrome was first described by Japanese geneticists Yoshikazu Kuroki and Norio Niikawa in 1981. At first it was believed that the condition was found mostly in Japan, but it is now known that the syndrome is equally prevalent worldwide.
It's really quite interesting.

Congrats to you, Mind! I'm so glad you're doing better and here's to many, many more stroke-free years!  

[.Tortured. .Pumpkin.]

Moyamoya? Isn't that a type of Fish?

[b].Tortured. .Pumpkin.[/b]| 1, 3, 2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Female
Likes (Max of Ten):
Tasteful neon
Monochromes
Naturals
Working dogs
FLUFF (chest fluff, face fluff, leg fluff, belly fluff, FLUFF)
BIG hair
Peridots
Spoopy stuff (Halloween is my jam, believe it or not XD )
Skeletons
Glooooowy stuff
Dislikes (Max of Ten):
Baldness, I guess? I mean I don't dislike it, but fluffy dog, yo.
Flat colors can be nice but kind of boring sometimes I guess?
I dunno, man. I'm just happy to participate. XD

Questionaire

Without looking it up, what comes to mind when you hear "Moyamoya"?: YOUUUUU. 'Cause you told me a bunch about it already. XD
What disease/illness/syndrome has affected your family the most? : I personally have IgA Nephropathy, also known as Berger's Disease, buuuut various types of hypothyroidism and diabetes are probably most prevalent.
What is an Orphan Disease?: " condition that affects fewer than 200,000 people nationwide" - fda.gov

Quote:

OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there

Disease Name:IgA Nephropathy / Berger's Disease
How rare is it?: Less than 200k nationwide ;D (I kid, sort of.) Basically, I couldn't find a clear-cut answers. While it is pretty rare, it's listed as one of the most common kidney diseases. It affects men more than women, and Caucasian and Asian individuals than it does people of other ethnicity.
Summarize what it's like:
What I've experienced:
So much bloody pee. All the bloody pee.
Basically, as a child, I began getting frequent, dramatic, quick onset UTIs. I must've been like 6 when it began.
I continually got treated for bacterial infections, but no matter what they threw at it, they just kept on coming. With at least one UTI a month for a year or so, I was finally sent to a urologist, then finally a pediatric nephrologist. I had a bunch or kidney and bladder function tests run, one including being catheterized, having a gallon of (what felt like the coldest ever) water pumped into my bladder, and voiding on the table in front of my nurses and doctor. I also had a buuunch of ultrasounds and x-rays taken pretty regularly within that time.
They'd been finding elevated protein in my urine along with red blood cells (often times frank blood), but consistently ruled out Berger's Disease because of my age (it tends to occur later in life), gender, and it's rarer than other possible causes (they did a loooooot of teaching on hygiene, hoping it was just a little girl wiping back to front and not washing her hands).
Growing up with it wasn't overly dramatic or anything. Treatment was pretty conservative because of my age. Typically, immunosuppressants, steroids, NSAIDs, statins, and ACE inhibitors are used to keep the kidneys from becoming overly inflamed, keeping the glomerular filtration rate lower by keeping blood pressure down, and preventing your body from releasing IgA in the first place. I was on a special diet, wasn't really allowed to have salt on anything (and to this day I don't even like the taste of salt so yay), and was aaaalways pounding water.
As an adult, I still have at the very least trace amounts of blood and protein in my urine at all times. I keep good track of my blood pressure, keep track of my salt and cholesterol intake, and see a doctor twice a year for blood tests. I get pretty frequent UTI-like symptoms, and when my urine comes back negative for bacteria but positive for the proteins and blood, I get put on short-term steroid therapy. It's kind of just one of those things that you're always aware of and have to monitor, but for me, personally, it hasn't been detrimental to my life. It's kind of scary to know that down the line I may possibly need a kidney transplant and that it can develop into chronic kidney disease, but as of right now everything looks A-okay, and it tends to be a pretty slowly-progressing disease. I had to look it up, but I guess that for 70% of those who are diagnosed, they'll live a normal life without complications. ^__^

I mean. Sorry for the not-so-summary summary.
As a fun fact that I still find hilariously ironic: My pediatric nephrologist was named Dr. Hand, and he had no thumb.

 

[mindsend]

Kivras

Moyamoya? Isn't that a type of Fish?

[b]Kivras[/b]| Semi, 1, 2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Any! But if I MUST choose...Female!
Likes (Max of Ten):

1. Raptors
   
2. Orcs
   
3. Skulls and Bones
   
4. Stars/Space
   
5. Sumi-e
   
6. Tentacles (Inky! No suckers!)
   
7. Fluff
   
8. Creepy/Spooky
   
9. Spiders
   
10. World of Warcraft

Dislikes (Max of Ten):

1. Snakes (ball pythons ok!)
   
2. Minis
   
3. Aquatics
   
4. Bald
   
5. Saddles/Tack
   
6. Clowns
   
7. Yellow
   
8. Orange
   
9. Green
   
10. Tentacles w/Suckers

Quote:

Optional: Three inspirational images

show spoilerhide spoiler

Questionaire

Without looking it up, what comes to mind when you hear "Moyamoya"?: A type of fish, honestly. Like...a high-class, $80 a piece sushi-quality fish. (LMAO I didn't even notice the header of this form.....)
What disease/illness/syndrome has affected your family the most? : Right now? Type 2 Diabetes. My mom just got diagnosed, and I'm personally scared to go to the dr's because I don't want to be diagnosed.
What is an Orphan Disease?: I think it's a disease that affects less than 7,000 people worldwide? Basically, SUPER rare.

Quote:

OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there

Disease Name: Kabuki Syndrome [2]
How rare is it?: 1 in 32,000
Summarize what it's like: Common symptoms include mild cognitive disability, impaired growth, various types of skeletal malformations and prominent finger pads. The condition is sometimes known as Kabuki makeup syndrome, referring to the characteristic appearance of long eyelids and arched eyebrows associated with the disorder, which resembles the makeup of actors in the traditional Japanese Kabuki theatre. The cause is genetic and the syndrome was first described by Japanese geneticists Yoshikazu Kuroki and Norio Niikawa in 1981. At first it was believed that the condition was found mostly in Japan, but it is now known that the syndrome is equally prevalent worldwide.
It's really quite interesting.

Congrats to you, Mind! I'm so glad you're doing better and here's to many, many more stroke-free years!

psst: the semi is 1, the male is 2, and the female is 3: You posted semi, 1, 2 which means you've got the semi posted twice and the female left out: Please repost this: you only gotta fix your preferences

<3  

[viatorai]

Moyamoya? Isn't that a type of Fish?

[b]Kivras[/b]| 1, 2, 3

SEMI CUSTOM INFO

Semi-Custom Sex preference: Any! But if I MUST choose...Female!
Likes (Max of Ten):

1. Raptors
   
2. Orcs
   
3. Skulls and Bones
   
4. Stars/Space
   
5. Sumi-e
   
6. Tentacles (Inky! No suckers!)
   
7. Fluff
   
8. Creepy/Spooky
   
9. Spiders
   
10. World of Warcraft

Dislikes (Max of Ten):

1. Snakes (ball pythons ok!)
   
2. Minis
   
3. Aquatics
   
4. Bald
   
5. Saddles/Tack
   
6. Clowns
   
7. Yellow
   
8. Orange
   
9. Green
   
10. Tentacles w/Suckers

Quote:

Optional: Three inspirational images

show spoilerhide spoiler

Questionaire

Without looking it up, what comes to mind when you hear "Moyamoya"?: A type of fish, honestly. Like...a high-class, $80 a piece sushi-quality fish. (LMAO I didn't even notice the header of this form.....)
What disease/illness/syndrome has affected your family the most? : Right now? Type 2 Diabetes. My mom just got diagnosed, and I'm personally scared to go to the dr's because I don't want to be diagnosed.
What is an Orphan Disease?: I think it's a disease that affects less than 7,000 people worldwide? Basically, SUPER rare.

Quote:

OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there

Disease Name: Kabuki Syndrome [2]
How rare is it?: 1 in 32,000
Summarize what it's like: Common symptoms include mild cognitive disability, impaired growth, various types of skeletal malformations and prominent finger pads. The condition is sometimes known as Kabuki makeup syndrome, referring to the characteristic appearance of long eyelids and arched eyebrows associated with the disorder, which resembles the makeup of actors in the traditional Japanese Kabuki theatre. The cause is genetic and the syndrome was first described by Japanese geneticists Yoshikazu Kuroki and Norio Niikawa in 1981. At first it was believed that the condition was found mostly in Japan, but it is now known that the syndrome is equally prevalent worldwide.
It's really quite interesting.

Congrats to you, Mind! I'm so glad you're doing better and here's to many, many more stroke-free years!
(And WHOOPS SORRY thanks for the heads up<3)  

[Andranis]

Moyamoya? Isn't that a type of Fish?

[b]Andranis[/b]| 3, 1, 2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Female
Likes (Max of Ten): Classic husky markings, spots, stripes, bold colors, soft colors, creepy markings, cloud markings, paisley, plaid
Dislikes (Max of Ten): Yellow combined with purple, slime/mucus, holes(That one... Phobia... I'm awful at spelling, though), grape taffy purple, puke green

Questionaire

Without looking it up, what comes to mind when you hear "Moyamoya"?: A Moa bird
What disease/illness/syndrome has affected your family the most? : Assorted eye conditions
What is an Orphan Disease?: A condition that afflicts less than 200,000 people

Quote:

Delete this entire quote if you're not going for the extra ticket

OPTIONAL FOR BONUS TICKET
Educate me on one of the Orphan Diseases out there

Disease Name:Psoriasis-related juvenile idiopathic arthritis (Because I have psoriasis, though not this variety)
How rare is it?: No more than 9 out of 100,000 people
Summarize what it's like: To put it in as simple terms as possible, like regular(Ahaha, "REGULAR"... Ha...) psoriatic arthritis, it's arthritis directly related to having psoriasis... Except in this case its onset is before the age of 18 - As young as 6 years old in girls. The joints become painful and don't move as well without that pain. So imagine arthritis... As a child. And all you want is to bounce around with your friends, but it hurts to do it. It sucks.

Congrats on being in recovery, and may your days continue to be filled with good tidings! heart  

[Fea Line]

Moyamoya? Isn't that a type of Fish?

[b]Fea Line[/b]| 3, Semi, 2

SEMI CUSTOM INFO

Semi-Custom Sex preference: Male
Likes (Max of Ten):
1: Creepy/Spooky
2: Sumi-E
3: World of Warcraft
4: Felines
5: Celestial
6: Skulls + Bones
7: Pastel Rainbows
8: Fluff Fluff FLUFF
9: Long manes/tails
10: Dragons
Dislikes (Max of Ten):
1: Bald
2: Scenery as markings
3: Yellows with browns
4: Clashing colors

Quote:

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Without looking it up, what comes to mind when you hear "Moyamoya"?: Honestly, some kind of anime. A kind that looks like it might be silly and light-hearted but probably drops feels on ya outta know where via cute romance or something.
What disease/illness/syndrome has affected your family the most? : Diabetes. My dad has it, it runs in his side of the family and I'm always scared I'm going to end up with it. I also have tachycardia and have to be on pills for the rest of my life but that isn't quite as nerve wracking to me.
What is an Orphan Disease?: A type of very rare disease, fewer than 200,000 people world wide are diagnosed with one.

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Educate me on one of the Orphan Diseases out there

Disease Name:Epidermolysis Bullosa
How rare is it?: It affects 1 out of every 20,000 births in the US. Some list it at approximately 200 children a year are born with this condition.
Summarize what it's like:Epidermolysis Bullosa is the general term for the group of related diseases where your skin is fragile and severe, painful blistering occurs. Its often called the disease where your skin falls off. Things such as minor injuries, rubbing of the skin, scratching or even heat can trigger these blisters. And in some cases, the blisters can even form inside the body such as the mouth. This disease is inherited, has no cure and can only be managed by treating the itching symptoms and the pain. The more severe the disease is, the more likely it is to be fatal.

 

[odet amo]

Moyamoya? Isn't that a type of Fish?

[b]Odet Amo[/b]| 1, 2, 3

SEMI CUSTOM INFO

Semi-Custom Sex preference: Male
Likes (Max of Ten): Day of the dead, Siberian Husky/Wolf markings, Big cat markings, Sumi-e, long hair, heterochromia eyes, glow paint, scooby doo, ghosts
Dislikes (Max of Ten): Gore, blood flowing out of the body, pink (a little mixed in is okay), Lots of yellow, girly girl

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Without looking it up, what comes to mind when you hear "Moyamoya"?: Honestly...Hawaii and a hula hoop? Why, I have no clue.
What disease/illness/syndrome has affected your family the most? : N/A
What is an Orphan Disease?: A disease that effect so few people that (until the past few decades) very little resources have been put into helping people diagnosed with it.

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Educate me on one of the Orphan Diseases out there

Disease Name: Ehlers-Danlos syndromes
How rare is it?: Fewer than 200,000 US cases per year - although in recent years it's believed it might be more common but many people are not diagnosed with it because they have a less severe case. There are 13 subcategories and several others that don't currently fit with the current definition but are still listed with EDS.
Summarize what it's like: There are several different types which vary in severity but the main problem is EDS effects the stability of connective tissue, for example cartilage. This can create joint problems (hipper mobility, musculoskeletal pain), arterial/intestinal/uterine fragility or rupture, skin elasticity (fragile skin that tears or bruises easily).

I'm extremely double jointed (can pop all my figures, one wrist, both shoulders in and out of place and that's only on my arms...) and have had muscular skeletal pain since I was in grade school. My parents have always been very wary of me getting tested because of preexisting condition problems with issuance and while a lot has changed on that front since my problems first started I've never delved into it further.