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Tags: weight, obesity, health, fitness, wellbeing 

Reply Specific Health Issues
PCOS~Polycystic Ovarian Syndrome

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LadyEladrin
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PostPosted: Thu Aug 27, 2009 1:46 pm


Above all else...

Please use this thread to discuss PCOS, your way of dealing with it, how it's affected you, etc. smile

http://www.womenshealth.gov/faq/polycystic-ovary-syndrome.cfm
http://www.pcosupport.org/

From Womens Health.gov: What are the symptoms of polycystic ovary syndrome (PCOS)?

WH.gov
Not all women with PCOS share the same symptoms. These are some of the symptoms of PCOS:

* infrequent menstrual periods, no menstrual periods, and/or irregular bleeding
* infertility (not able to get pregnant) because of not ovulating
* increased hair growth on the face, chest, stomach, back, thumbs, or toes—a condition called hirsutism (HER-suh-tiz-um)
* ovarian cysts
* acne, oily skin, or dandruff
* weight gain or obesity, usually carrying extra weight around the waist
* insulin resistance or type 2 diabetes
* high cholesterol
* high blood pressure

* male-pattern baldness or thinning hair
* patches of thickened and dark brown or black skin on the neck, arms, breasts, or thighs
* skin tags, or tiny excess flaps of skin in the armpits or neck area
* pelvic pain
* anxiety or depression due to appearance and/or infertility
* sleep apnea—excessive snoring and times when breathing stops while asleep.


Gee, some of these sound like the same problems a person supposedly gets for being fat! Could it be PCOS instead? I wonder. rolleyes

"Does polycystic ovary syndrome (PCOS) put women at risk for other health problems?

WH.gov
Women with PCOS have greater chances of developing several serious, life-threatening diseases, including type 2 diabetes, cardiovascular disease (CVD), and cancer. Recent studies found that:

* More than 50 percent of women with PCOS will have diabetes or pre-diabetes (impaired glucose tolerance) before the age of 40.
* Women with PCOS have a four to seven times higher risk of heart attack than women of the same age without PCOS.
* Women with PCOS are at greater risk of having high blood pressure.
* Women with PCOS have high levels of LDL (bad) cholesterol and low levels of HDL (good) cholesterol."


may you know joy

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PostPosted: Thu Aug 27, 2009 5:24 pm


The one thing that really bugs me about PCOS is that its "treatment" really is all about weight loss. If you want to have kids, you're advised and expected to lose weight by all the doctors and all the PCOS-related (self-help) books. It's really frustrating for me because it's pitting the advancement I've made in self-acceptance & confidence against my strong desire to have a family someday. It's almost a constant struggle for me, and it keeps the old pro-diet/pro-"torture" voice in my mind alive, which keeps me from being able to completely accept myself the way I am.
Honestly! Go look at the PCOSupport's community forum, and they're all obsessed with weight loss... It's upsetting.

Along a similar strain, part of the treatment is also eating only certain foods. One of the books I have on PCOS plans out every part of your daily meals, and it's incredibly restrictive. I didn't even consider it for a second because it was too reminiscent of my old fat camp diet, and it scared me. I don't want to have to watch every single thing I eat. I want to be able to enjoy food.
I still need to be tested for insulin resistance, too... Last time that was talked about was when I was first diagnosed with PCOS (years ago), and the doctor they referred me to (to ask if I needed to glucophage/metformin) took one look at me and said I didn't need the medication for the insulin resistance part (though it's also supposed to help in the fertility field, too). Kind of questioning his expertise, but whatever.

Nayva
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LadyEladrin
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PostPosted: Mon Sep 07, 2009 8:28 pm


This too is sacred

Nayva, and anyone else, you might be interested in this post and this one too from Randomquorum. She finally got a doctor to diagnose AND treat her PCOS in a variety of ways. Maybe you can find some info in there to bring to your doc on your next visit. smile

love as thou wilt
PostPosted: Wed Nov 18, 2009 6:27 pm


I don't have diabetes or even pre-diabetes, so yay!

I forgot to post my thanks last time. That second link in particular is fantastic. This part especially:


Quote:
I’d like to join [Sleepydumpling] in whinging about the lack of weight-loss-crazy free PCOS sites. I haven’t been involved in the cysterhood as much as Sleepydumpling, and frankly I’m grateful for it. If I had been diagnosed with PCOS by a different doctor before I found fat acceptance, I can only imagine what my life would be like now. It makes me want to cry. I feel like it’s one of the cruellest jokes the world has ever played on women.

PCOS makes you fat. PCOS makes it hard to lose weight. The only treatment for PCOS is to lose weight. Being fat gives you PCOS.

Anyone see a vicious cycle here??

It’s a cycle of blame and shame, and it’s always the woman’s fault. So the majority of cycster all band together to encourage/blame one another, because they don’t know that there’s any other way. And it makes me so mad.

You do not give yourself PCOS by being fat. PCOS is not self-inflicted. It is an endocrine disorder and is strongly genetic. Please do not beat yourself up about your failure to lose weight – almost nobody can achieve that anyway, even if they are not suffering from a disorder which makes it harder.


It makes me feel so much better to know I'm not the only one who has such a tough time sifting through those forums of fat/self hatred...

Since 1/10 women have PCOS and there are plenty believers in FA/HAES that have PCOS, you'd think we'd have our own forum by now...

Nayva
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Nayva
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PostPosted: Wed Dec 02, 2009 2:59 pm


KuraiTsuki
    [/lurk]

    http://www.gaiaonline.com/forum/lifestyle-discussion/my-ovaries-hate-me-pcos-awareness-and-support/t.56335791/

    Here. Now they don't even have to do the research. It's all right there. Cited and everything.

    And here are a few extra interesting articles about the link between obesity and PCOS.

    http://www.aphroditewomenshealth.com/news/20090217043715_health_news.shtml
    http://pcos.about.com/od/callingyourdoctor/a/pcos_and_obesity.htm
    http://www.medicalnewstoday.com/articles/142363.php
    http://www.nature.com/ijo/journal/v26/n7/abs/0801994a.html

    [lurk]
PostPosted: Wed Jun 30, 2010 7:45 pm


Definitely going to talk to my doctor now...

cherry god mother

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LadyEladrin
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PostPosted: Thu Jul 01, 2010 12:36 pm


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*hugs* Take care, Cherry!
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PostPosted: Tue Oct 19, 2010 9:50 pm


An ex-girlfriend of mine has this. It sucks, except for the part where she has very infrequent menstrual cycles. I pity anyone else who needs to live with it.. sad

MunchkinFlogger

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Rust Harlequin

PostPosted: Tue Jan 25, 2011 9:36 pm


My grandmother has it and I'm showing signs but I don't want to be self doctoring myself.

I wanted to ask since she has it how much more possible is it for me to have it?
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