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Perfectly Flawed - A Medical Disability Guild

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Shimi-Baka
Captain

PostPosted: Mon Jun 05, 2006 2:33 pm


Because it's slow and small and most people don't come by after joining confused
PostPosted: Sun Jun 11, 2006 11:04 am


Oh. That's silly of them.
I try to drop by every week. Although with summer coming, well, I'll still be here.
ttfn

chewmynails


senzublast

PostPosted: Thu Jul 06, 2006 12:07 pm


chewmynails
Oh. That's silly of them.
I try to drop by every week. Although with summer coming, well, I'll still be here.
ttfn
I've been.. well, lazy xd I'm here now. = ]
PostPosted: Wed Jul 19, 2006 10:45 pm


My family is where I have the most difficulty. I've got a genetic condition, but the other living affected relative lives really far away and I barely have contact with him. My family just assumes I'm being lazy or making excuses much of the time. I don't know how to explain to my mother, for instance, what it feels like for my shoulder or hip to just... slip out and then back in when I'm doing something totally normal.

Most of my friends are fine with my limits (IE: when roughhousing, if I say stop, it's not a suggestion. sprinting is NOT an option, etc) and we kind of joke about it (especially things like the ace wrap that lives in my purse, just in case). Actually, they're pretty great.

A lot of them have their own problems, either mental or physical, though, so it's not like I'm the only one.

Also, two of my closest friends are online buddies. Ended up meeting them because of shared enthusiasm for a TV show, and one's a brittle diabetic, the other has neurofibromitoma (may have butchered the name of that one). Completely by coincidence.

lili of the lamplight


Devilicious Cherry Lips

PostPosted: Thu Nov 23, 2006 10:12 am


People just don't understnad stuff they can't relate to I guess people at my school are normally ok some are rude about certain aspects of it.
PostPosted: Thu Dec 28, 2006 12:34 pm


Most take for it for granted.They don't know how hard it could be,because most are fully active and operation.

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PostPosted: Sat Jan 12, 2008 8:22 am


Yeah, its annoying. I made a post here in this same thread two years ago, under a different account. I can't believe this thread still exists. My old account was miyakoume. I'm happy to say that in my middle school people finally started to understand me more. Its not that way in my high school though. I'm going to have to start all over again. I've also improved my coordination and now I can ride a bike on a busy road. I've also started taekwondo. I still struggle a little bit with balance during kicks though, and the doctors are keeping a close eye on my back. Speaking of which, I think I'm due for another physical soon. I hope they don't make me run or anything like that. I'm also trying to persuade my mom to get me vaccinated for cervical cancer.
PostPosted: Mon Jun 02, 2008 9:31 pm


I don't know if I want the vaccine or not, actually. My doctor is trying to push it on me.

lili of the lamplight


windy_angel141

PostPosted: Sun Jul 06, 2008 3:15 pm


I have a disability that everyone can see....
but I'm fine in school. Mostly ppl don't care. And I like that
there are also ppl I talk to and they think I'm not that bad and then later we become friend, well sorta.
all the teachers/principles joke around when I zip by in my wheelchair.
It's lil annoying sometimes, but I know it's their way to care about me
so I'm fine in school.

But.....when I go outside the boundary of school or house.
I definetely don't fit in.....and things were lot harder back in elementary
because......1st/2nd/3rd/4th/5th grader? They do care........not in a good way. I have to try hard and make an area that understands me.
So far I have done that in my school and in my house....
it's hard to fit in but it would be so great when everyone will be open to disabillity ppl. But sometimes I feel sad that I actually have to talk to ppl
to try to understand me.....because some ppl just don't get it.
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Perfectly Flawed - A Medical Disability Guild

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