Semi-Custom Sex preference: Male Likes (Max of Ten): foxes, wolves, sumi-e, music, flowers, galaxy/space, sunsets, long flowy hair, pastel colors, fantasy Dislikes (Max of Ten): facial hair, gore, clowns, tentacles
Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: Moa-an extinct flightless bird What disease/illness/syndrome has affected your family the most? : Mental Illness-bipolar depression and anxiety What is an Orphan Disease?: A rare disease that effects a small percentage of the population.
Posted: Tue Oct 23, 2018 11:06 pm
Moyamoya? Isn't that a type of Fish?
[b]Teigra[/b]| 1, 3, 2
SEMI CUSTOM INFO
Semi-Custom Sex preference: I'm good with either that inspires you, but if you don't feel drawn one way or the other, then let's go female. Likes (Max of Ten): Big cat markings Naturals Kitsune Galaxies/Nebulae Gothic Tribal markings Glow (especially eyes) Draping cloth or sashes Wolves Huskies Jewelry Dislikes (Max of Ten): Bald ponies (sometimes okay but for this, prefer fuzzy doggos) Neon lime green or yellow as a primary color (accents are fine) Scenery as markings
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: Some kind of rare Japanese fish, like an expensive delicacy What disease/illness/syndrome has affected your family the most? : Diabetes or cancer; I've been a Type 1 Diabetic since age 6 and this seems to run in my family. I have an aunt currently waiting for a kidney transplant due to lifelong complications from this. However, I also lost three of my four grandparents to various forms of cancer, so... What is an Orphan Disease?: A condition that affects fewer than 200,000 people nationwide according to US criteria.
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OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:Tourette Syndrome How rare is it?: The National Institutes of Health estimates that there are approximately 100,000 cases of Tourette Syndrome in the United States, although the prevalence may be much higher if all mild cases of tics are counted. Summarize what it's like: Tourette Syndrome is a hereditary neurological movement disorder that is characterized by repetitive motor and vocal tics. Symptoms may include involuntary movements of the extremities, shoulders, and face accompanied by uncontrollable sounds and, in some cases, inappropriate words.
Semi-Custom Sex preference: CC Likes (Max of Ten): Pastels, Spooky, Feathers, Bells, Rainbow, Cute, Fluffy, Sparkles, Purple, Narwhals Dislikes (Max of Ten): Puke Green
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Without looking it up, what comes to mind when you hear "Moyamoya"?: When I hear the word MoyaMoya, honestly even after reading everything you've posted about it, I still think that it's these young kids getting super excited over a yummy treat that they get so rarely called "Moyamoya" so they are bouncing and yelling "Moyamoya! It's time for MoyaMoya!" What disease/illness/syndrome has affected your family the most? : Depression. It's a daily struggle to keep myself going most days, but, I do try to find one positive thing in each day. What is an Orphan Disease?: It is a disease where so few people in the world have it. I think the number is like less then a couple hundred thousand. They can be caused by any number of things, from genetics to enviromental issues.
Posted: Wed Oct 24, 2018 12:04 am
Moyamoya? Isn't that a type of Fish?
[b]tefla[/b]| 1, 3, 2
SEMI CUSTOM INFO
Semi-Custom Sex preference: CC (I honestly am letting you decide. I'm okay with either) Likes (Max of Ten): space, aurora borealis, winter, cool colors, henna/tribal designs, occult symbols, crystals, long hair, lanterns Dislikes (Max of Ten): zombies, brown color, baldness, extreme gore, exposed organs
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: It almost sounds like the Japanese greeting "Moshi Moshi". What disease/illness/syndrome has affected your family the most? : N/A What is an Orphan Disease?: An orphan disease may be a rare disease (according to US criteria, a disease that affects fewer than 200,000 people) or a common disease that has been ignored (such as tuberculosis, cholera, typhoid, and malaria) because it is far more prevalent in developing countries than in the developed world.
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OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:Leprechaunism How rare is it?: 1 case documented in every 1 million births Summarize what it's like: Leprechaunism can be caused by either a disruption or mutation in the insulin receptor gene. Characterized in infants by growth delays and often cranial and endocrine abnormalities have been observed. Individuals with Leprechaunism are often thought to be extremely resistant to the hormone insulin.
Semi-Custom Sex preference: Up to you Likes (Max of Ten): Feathers, nature, woods, vines, leaves, harmonizing colours Dislikes (Max of Ten): Bones, gore, clashing/contrasting colours, water edits (tentacles are ok), body parts in the wrong place (i.e. multi eyes are ok, eyes on the knees are not)
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: I actually learned about it from you months ago so I don't remember what I thought it was at the time. It does sound like the Mola mola though ^-^~ What disease/illness/syndrome has affected your family the most? : Diabetes? My Nan has epilepsy but I believe that is because she is a preemie and isn't hereditary. We do seem to have high rates of premature births in our family line though... What is an Orphan Disease?: A life-threatening or chronically debilitating diseases that affects fewer than 1 in 2,000 people.
Quote:
OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:X-linked agammaglobulinemia How rare is it?: X-linked agammaglobulinemia (XLA) is a rare genetic disorder discovered in 1952 that affects the body's ability to fight infection. Summarize what it's like: I have a friend who has this disorder and (from what I know) he might be one of the oldest living people in America with XLA at the age of 37! Basically he has no lymphatic system and needs to have gammamune infusions every month to mature his white blood cells so he can fight off infections and common diseases. He cannot have immunizations (other than killing him, they also would not work as intended) so he relies on herd immunity to stay healthy.
Posted: Wed Oct 24, 2018 1:14 am
Moyamoya? Isn't that a type of Fish?
[b]xKOVAKtheWOLFx[/b] | 1 3 2
SEMI CUSTOM INFO
Semi-Custom Sex preference: cc Likes (Max of Ten): naturals, forest, spooky, rainbow, glow, feathers Dislikes (Max of Ten): girly.
Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: i remember hearing of it from you, but just now think of a repetitive name What disease/illness/syndrome has affected your family the most? : disbetes What is an Orphan Disease?: super rare disease!
Semi-Custom Sex preference: Female Likes (Max of Ten): Naturals, Stars/celestial themes, long curly hair, Sumi-e, Pokemon Dislikes (Max of Ten): Gore, extra body parts (eyes, mouths, etc), neon colors, pastels, bald ponies
Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: Like a lot of people, a fish. What disease/illness/syndrome has affected your family the most? : Mostly cancer. What is an Orphan Disease?: A disease that effects less than 200k people.
Quote:
OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:Fibrodysplasia ossificans progressiva How rare is it?: Fibrodysplasia ossificans progressiva is a very rare disorder, believed to occur in approximately 1 in 2 million people worldwide. Several hundred cases have been reported. Summarize what it's like: Muscles, ligaments, and other connective tissue are turned into bone. Like a living statue.
Posted: Wed Oct 24, 2018 1:52 pm
Moyamoya? Isn't that a type of Fish?
[b]Gl!tch~[/b]| 1, 3, 2
SEMI CUSTOM INFO
Semi-Custom Sex preference: CC Likes (Max of Ten): Space, aquatics, skulls, bones, dapple, ghosts, feathers, gradients, natural colors, pastels Dislikes (Max of Ten): Guts, neon colors, eye gore, hair eyes, hair mouths, plaid, polka dots, mustard yellow, clowns, dolls
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: A fish :') (But that's the mola mola, isn't it?) What disease/illness/syndrome has affected your family the most? : Tie between cancer and Alzheimer's What is an Orphan Disease?: Wildly rare/uncommon diseases
Semi-Custom Sex preference: Male Likes (Max of Ten): Sumi-e, Phoenix, ice themes, long hair, lotuses, gender non-comfortmity, gothic themes, ultra feminine themes, rainbow, jewelry Dislikes (Max of Ten): blood, gore, butterfly wings, moths, Browns, trypophoboa, growths/tumors
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: something Hawaiian in nature What disease/illness/syndrome has affected your family the most? : Breast cancer What is an Orphan Disease?: a disease that is rare enough that therefore lacks funding for research and aid
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OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:[Spinocerebellar ataxia How rare is it?: About 150,000 cases at a given time in the US Summarize what it's like:A hereditary degenerative disease that affects that portion of the brain that controls movement. Symptoms are loss of coordination in ability to walk, speak, or any portion of movement. Most people are confined to wheelchairs within 10-15 years after onset and others often require aid for other daily tasks.
Posted: Wed Oct 24, 2018 4:58 pm
Moyamoya? Isn't that a type of Fish?
[b]saedusk[/b]| 1, 2, 3
SEMI CUSTOM INFO
Semi-Custom Sex preference: Male Likes (Max of Ten): 1. naturals 2. flowers 3. pastel pinks 4. pastel purples 6. fur/fluff 7. stars/galaxies 8. dragonflies Dislikes (Max of Ten): 1. hot pinks
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: honestly something like a tropical fish or a fruity drink What disease/illness/syndrome has affected your family the most?: not sure this is technically applicable, but a lot of people in my family have had knee issues that required surgery/replacements What is an Orphan Disease?: a rare disease/syndrome/etc that affects less than 200,000 people nationwide
Quote:
OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:Saethre-Chotzen syndrome How rare is it?: ranges from 1/25,000 to 1/50,000 Summarize what it's like: It's a congenital disorder that affects the shape of the head and face which can cause droopy eyelids, widely spaced eyes, etc. Severe cases may include minor learning disability. Most people with this syndrome lead average lives. It was discovered by two separate scientists in 1931 and 1932.
Semi-Custom Sex preference: Male Likes (Max of Ten): Tentacles Blood Mohawks weapons feline type inspiration nature inspired dystopian type stuff
Dislikes (Max of Ten): Snakes Roaches
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: Makes me think of fish (like maui-maui) What disease/illness/syndrome has affected your family the most? : Degenerative disc disease What is an Orphan Disease?: It's a disease that affects a very small part of the population (200,000 nationwide). Often drug companies aren't interested in lookign or cures because it's not profitable.
Quote:
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OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:Neurofibromatosis 1 How rare is it?: 1 in 3000 Summarize what it's like: Children are born with it. Half of the time it's passed down and the other half they are the first in the family to have it. It causes benign tumors that often press on nerves/optic nerves.
Posted: Wed Oct 24, 2018 5:37 pm
Moyamoya? Isn't that a type of Fish?
[b]Amira Keller[/b]| 1,3,2
SEMI CUSTOM INFO
Semi-Custom Sex preference: Either, but if I am to choose....Female Likes (Max of Ten):Earth Tones, Glowy things, Fluff!, Lots of Hair, Fantasy, Swirls, Patterns, pretty much anything but what's listed below Dislikes (Max of Ten): Guts, Bald, Body Horror (such as infestations under the skin, flesh stretching,etc.)
Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: A peach What disease/illness/syndrome has affected your family the most? : Distal Myopathy and mental illness What is an Orphan Disease?: A very rare disorder affecting less than 200,000
OPTIONAL FOR BONUS TICKET Educate me on one of the Orphan Diseases out there
Disease Name:Distal Myopathies How rare is it?: 1-9 in a million Summarize what it's like: Early adult onset or late adult onset specific form of distal muscular dystrophy. Mostly caused by mutation in several protein related genes. With distal myopathy its the degeneration of the muscles starting in the distal limbs (feet or arms) and progressively moves inward to the shoulders, hips, etc. With my family we have two mutations, a sub form of Weilander and then we have a mutation that starts in the 20s/30s that progresses quickly and starts to affect the diaphram/lungs/respiratory functioning.
*huggles* Congrats on 1 year free of strokes! May there be many many more!
Semi-Custom Sex preference: Maaale Likes (Max of Ten): Facial hair, glowy bits, glitch motifs, flowers, tentacles, long hair, braids, natural things, tiger stripes, rosettes/spots Dislikes (Max of Ten): needles (medical kind), extreme body horror, worms, clowns, hot pinks, muddy oranges/browns,
Quote:
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Questionaire
Without looking it up, what comes to mind when you hear "Moyamoya"?: I'm not going to lie when I first thought of Moyamoya I thought it was a fish type @o@ But I had a vague idea that it was more or less actually some sort of disease/illness once I shook the idea and the big air of ignorance on the subject. What disease/illness/syndrome has affected your family the most? : Alzheimer's Disease (Coupled with Frontal Lobe Dementia) . It took the life of my grandfather and kind of rattled my entire family. Not only that but the fact that most of our family has a chance of also retaining the disease too... scary. What is an Orphan Disease?: Orphan diseases are ones that affect less than 200k people nationwide.
mindsend generated a random number between
1 and 35 ...
24!
Posted: Wed Oct 24, 2018 9:02 pm
Semi-custom CC 1: Semi-custom CC 2:
Short roll CC
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purrrplekitty catmagick| 1,3,2 Kivras HoneyTeaTree Fea Line
[img="200"https://www.tanyacasteel.com/wp-content/uploads/2018/08/narwhal-web.jpeg][/img]
