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 Posted: Fri Mar 25, 2005 12:38 pm
Hey guys... just thought i'd come and say hi as i haven't been in here for quite a while.... but I have some good and good news. lol.
ok. back in january, i had a PT conference that wasn't very well... naaman wasn't making any progress with them... now, despite not really being able to afford the expense at the time as my hours at work were crap then... i bought some baby einstein language flash cards, and a few books. i started reading to naaman at least for fifteen minutes everyday. that's all we do cuz his attention span won't sit for anymore... but, i've been focusing on buying books with pictures of words... like.. i bought a blue's clues big book of words... and each two pages are a setting.. with items in there that would be there. say the grocery store.. with various types of foods... or the bedroom with clothing.... and we'll spend some time. around the edges of the pages are items. and i'll say what they are...and he points them out in the book. because his PPI teacher was wanting him to point more to things specifically. also, I try cross using the BE flash cards with that book. I hold up a pic of a ball.. he finds it in the book.. or fruits and what have you... so.. and we been watching dora together and singing their songs... and finally... finally... the last two months we've had some major breakthroughs.... i find i can use special treats like... chocolate cake to bait him into talking. if i get some chocolate cake.... i feed it to him.. and in between bites, i ask him to say stuff... and he does it....we don't do that often.. because i don't want the cake to lose its effectiveness as a reward.... but, recently, his teachers wanted to see what they could do about bringing someone into the school to have his autism ceritified so more services and help were available to us.... which is great.i have to say his teachers have been so helpful.. more than the doctors or the neurologist.... and... i've been deliberating over letting him move onto kindergarten or do PPI for one more year... and i might do PPI just one more semester.. maybe for the fall and if he keeps progressing, kindergarten in the winter semester.... becaues i see him doing all of a sudden a lot better lately. and for a while, I was pretty sure he was just purposefully not being cooperative as far as speech goes for the speech therapist..... i mean. he would do ok at class... and at home. just not for her. but, she says the last several weeks he's suddenly started opening up to her. and takes her hand when it's time for speech... and has been cooperating.. and they are really happy... so...
oh yeah! and..we're making progress with washing our hands.. and taking baths.. thus desensitizing process with water. still have fights with bathtime.. but he is getting a lto better about hand washing. and i make him do it a lot now...lol. haircutting is still our biggest fight besides hair washing... however, i bought some johnson and johnson new product called buddies. and it's a spray on dry or wet hair detangler... i put some on and brush his hair a little. enough so that he doesn't go to school looking ragged. xd and... on top of that! the potty training is coming a long a little bit. he is finally letting me take his diaper off...and he's willing to sit on the ring for the big toilet. This is a relief as he was outgrowing the little potty he used to sit on. i am gonna put that away even.
but we have our routine now. i take him to the bathroom. we put the ring inthe toilet. pull the pants down, sit on the toilet. i let him sit there for a while.... so far nothing has gone in it. i am going to have to spend a few weeks charting his wetness/bm schedules i guess... so i can start timing when we go.. but then after a while, we get up, pull em up.. wash our hands.... so far this is going really really well... i think once i time it so he goes in the toilet... and i'll reward him... that he will understand...
so yeah. lots of good things happening with naaman. and today is first time in forever we both have a day off...so we might go to chucky cheeses or jeepers creepers or something...
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Posted: Fri Mar 25, 2005 10:01 pm
Graceangel, that is SO AWESOME!!! xd xd !! congrats to you and Naaman! Huge breakthroughs, how exciting! *gives you a huge hug* we've missed you, but i understand why you've been so busy. once agian, that is seriously so awesome......i'm stoked for you.....that's so cool...........i'll have to keep the flash cards and stuff in mind for when my son gets older, i'm worried about his attention span and how well he will be able to understand things........i'm so happy you, once agian, congrats to you and Naaman.
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Posted: Sat Mar 26, 2005 5:34 pm
Well, to be honest, [graceangel on her charity mule] what's really compelled me to work twice as hard with him on his issues... in a few years, he's gonna be elementary school age.. the age where kids will notice things that are different.. and possibly make fun of him.. and i'm trying to help him help himself as to prevent any of that... I know I was delayed on some stuff... oh, i'm not sure if i mentioned this before... but if any of you have children with speech delay, and they use sippy cups. Switch to the cups with the straws on them. The muscles they need to suck on the straw helps develop the muscles in their mouth they need to speak. Naaman's speech therapist suggested to me to switch to them... i did.. i got two.. and even started moving him to normal cups and just give him straws... adn he's doing well with them. i mean.. he's still not bursting out with conversational language skills.. but at least he's talking some.. and when you are dealing with special needs, it's good to be thankful for all your breakthroughs. Be thankful for any progress, because that means they are learning and developing even if it's slowly. 3nodding
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Posted: Mon Mar 28, 2005 5:27 am
dA_fUnKy_mOnKeY hi guys im home from kansas and engaged now ^_^ im so happy im going to slowly start replies so bear with me and hope you all are well ^_^ Congratulations Funky Monkey! That's so exciting. Are you making plans for when you'll be getting married?
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Posted: Mon Mar 28, 2005 5:31 am
Thelana Darkstar Liona Spryte Children can die as a result of stuff like this. (If anyone had bothered to take me for treatment when I was 8 I would not have tried suicide when I was 10, 13, 14, 16, etc.) Listen to your kids. Know your kids. That is possible. Sometimes people don't want to *face* the problem. It's sad, really. When you need help, you need help! I'm glad to see you managed to make it through. Did you find support from friends?
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Posted: Mon Mar 28, 2005 1:09 pm
Angelique~Yuna *gives you a huge hug* i know how it feels.........when i give ben a bath he screams so much, but i know he needs one....... Hi Yuna, Just out of curiosity, does Ben have trouble with sensory issues? Robert used to hate baths. He would shriek whenever we had to wash his hair. I felt awful shampooing him, but he had to be bathed! sweatdrop
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Posted: Mon Mar 28, 2005 1:13 pm
Dragoon_Arcadia Sorry I haven't been here in ages! My brother Phillip has a fit and he had to go to hospital, they kept him there for over a week, but he's ok now...I'm just glad he is doing good. Miss me? I haven't been on in a while, either. stare Sorry about that. Is your brother doing well now? What's up?
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Posted: Mon Mar 28, 2005 1:19 pm
dA_fUnKy_mOnKeY ~hugs you and everyone~ i missed you all...im so sad eric is diagnosed with hypotonic cerebral palsy, scoliosis some sort of cyst on his forehead in his nasal cavity, autism and a bunch of other stuffs im so depressed right now and they have him on a million medications and monday we have to drive 2 hrs to get down to another hospital in erie pennsylvania DX wait there while they do whole bunches of stuffs and drive 2 hrs back (they may do surgeries) and his wheel chair came yesterday with tilt in space and all these special straps to keep him upright and hold his hips and its all just so real omg im sorry im so whiny DX i go now ill bbs DX Funky Monkey, Oh! Sending big hugs your way! I have one of those two-hour drive appointments coming up for Robert in a couple of weeks. xp They're no fun, but it's important to get them the best care that they need. wink And, you're not whining at all. We go into Boston for follow-up appointments to discuss how Robert is doing with his dysgraphia, ODD, ADHD and Sensory Integration Disorder. But at least I don't have to worry about my kids having surgery now. I'm going in to have a biopsy a week from Friday. I have pre-op testing this Friday. I'm dreading the whole thing. It'll take them a couple of weeks to test the tissue to find out if its cancerous or not. Yuck!
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Posted: Mon Mar 28, 2005 1:44 pm
fletchen I'm going in to have a biopsy a week from Friday. I have pre-op testing this Friday. I'm dreading the whole thing. It'll take them a couple of weeks to test the tissue to find out if its cancerous or not. Yuck! Biopsy? OMG that no good i hope everything turn well for you. if you dont mind me asking what kind of biopsy are you having? I shall keep you in prayers tonight
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Posted: Mon Mar 28, 2005 1:56 pm
fletchen Angelique~Yuna *gives you a huge hug* i know how it feels.........when i give ben a bath he screams so much, but i know he needs one....... Hi Yuna, Just out of curiosity, does Ben have trouble with sensory issues? Robert used to hate baths. He would shriek whenever we had to wash his hair. I felt awful shampooing him, but he had to be bathed! sweatdrop yeah he totally hates the bath, i tried giving him a bath in the bathtub, and he screamed so much he lost his voice, so i hate giving him baths, but i feel so bad about doing it..........so i'm not exactly sure what other sensory issues he might have.......
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Posted: Mon Mar 28, 2005 2:04 pm
Thelana, thanks for your well wishes, ben has managed not to get whatever virus we had and he's doing ok today!
Pitterpat, i also worry about the same thing.....ben being made fun of at school because he is different.....and our speech therapist already has him trying out the cup with a straw....i maybe let him sip on it a few times during the week, and he sips from the straw fine, only i have to make sure it's a thickened liquid because he is still having a tough time with finer liquids.....i'm happy to hear that naaman is taking in language skills, i often wonder how ben will do.......and you are definately right, it's amazing when they have breakthroughs because like you said, they are learning, even if it's slower......and just this weekend, i heard ben really laughing for the first time, i was so happy i almost cried and my husband was so suprised to hear him laugh like that......
fletchen, i hope your biopsy goes well, i will pray that it's not cancerous......
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Posted: Mon Mar 28, 2005 3:35 pm
Angelique~Yuna i just got over some serious bad, butt kicking flu bug, and now my husband has it.....and now i'm worried ben will get it........i'm gonna call the doct tommorow and explain my worries.........please pray he wont' get it. crying Yuna ~ Oh yuck! I hate the flu. I hope your hubby feels better soon and Ben stays healthy. We usually end up having the flu go through the house, especially with three kids attending three different schools. stare Oh well. We've been dealing with sinus infections here. Robert has had a few and has been diagnosed with "sinus disease." I just got over one, too. One of the things the allergist has given us to use is called Sinus Rinse. I just started using it and it really does help with all the blockage. Who knew? 3nodding What works for you?
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Posted: Mon Mar 28, 2005 3:37 pm
dA_fUnKy_mOnKeY sorry guys havent been on much Marc and i are having some ""issues"" ive been a little down , ill be back to my cheery postful self soon XP Oh! I hope everything is okay, Funky Monkey. I'm here if you need to talk. heart
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Posted: Mon Mar 28, 2005 3:50 pm
Eris_Rose Biopsy? OMG that no good i hope everything turn well for you. if you dont mind me asking what kind of biopsy are you having? I shall keep you in prayers tonight Oh, I guess I was being rather vague, eh? xp I am having a biopsy of tissue in my breast. I was having a milky discharge even though I haven't nursed in four years. My OB sent me for a mammogram that showed an unusual growth and they did another mammogram that revealed the same results. So now I need to have it biopsied to find out if it's cancerous. Chances are it is benign, given that I just turned 35. LOL. It's probably nothing, but I just don't want to have to deal with it right now. stressed I feel like holding up the white flag! Thanks for your prayers, though. That is so comforting to me, really.
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Posted: Mon Mar 28, 2005 4:16 pm
Angelique~Yuna yeah he totally hates the bath, i tried giving him a bath in the bathtub, and he screamed so much he lost his voice, so i hate giving him baths, but i feel so bad about doing it..........so i'm not exactly sure what other sensory issues he might have....... My eldest, Robert, has Sensory Integration Disorder. He used to scream himself hoarse whenever I tried shampooing him. I won't even go into describing the stress involved in getting him haircuts when he was under age five. Anyway, once we found out he had SI we had an occupational therapist work with him who designed a "sensory diet" to help him. Sensory Integration Disorder
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