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Posted: Thu Dec 02, 2004 9:20 pm
thanks for all the thoughts, hugs, and prayers! *hugz ya* well here's how it went, it went really well actually.....it turns thought that the problem was that the milk i guess isn't thick enough for him i have to add rice cereal into his bottle........when the little guy swollows, it goes into his lungs, thus causing him to aspirate and choke instead of swallowing normally......tommorow i have to get ahold of the doctor and find out what i can do about his constipation...... gonk adn then on monday i have to take him to the ear, nose and throat specalist to find out what exactly is going on with his inner ears to find out how much hearing loss he suffers........so that's about it.......and then on saturday my husband is taking his LSAT test to get into lawschool, so i hope and pray he does well..........other then that......that's about it.....how' eric doing? i hope he's feeling better as the rest of your family hon! take care and once agian, thank you for your thoughts and prayers heart
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Posted: Fri Dec 03, 2004 7:36 am
poor ben... give him huggles..poor kiddo. i hope your fiance does well. and im glad you got some answers. Erics doing better. There was a drunken fight from my neighbors across the street. And right next to a church no less. Tisk tisk. So needless to say they woke him up and he refused to go back to bed . So he got up at 1:30 am and finally went back to bed at 4am and we were up at 830am for therapy gonk so sleepy. Let me know how everything goes*hugz*
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Posted: Fri Dec 03, 2004 8:03 am
dA_fUnKy_mOnKeY poor ben... give him huggles..poor kiddo. i hope your fiance does well. and im glad you got some answers. Erics doing better. There was a drunken fight from my neighbors across the street. And right next to a church no less. Tisk tisk. So needless to say they woke him up and he refused to go back to bed . So he got up at 1:30 am and finally went back to bed at 4am and we were up at 830am for therapy gonk so sleepy. Let me know how everything goes*hugz* scream that's horrible! stupid a** drunken people starting fights!! it's not fair, i would have been so angry if my kid woke up because of them and wouldn't go back to selep........ahh!!! *smacks the drunken people around* i hope you get some zzz's today..........i'm happy to hear he's feeling better....and thanks for the luck! take care hon! i gotta jet..........*hugz ya bunches*
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Posted: Fri Dec 03, 2004 1:51 pm
Angelique~Yuna dA_fUnKy_mOnKeY poor ben... give him huggles..poor kiddo. i hope your fiance does well. and im glad you got some answers. Erics doing better. There was a drunken fight from my neighbors across the street. And right next to a church no less. Tisk tisk. So needless to say they woke him up and he refused to go back to bed . So he got up at 1:30 am and finally went back to bed at 4am and we were up at 830am for therapy gonk so sleepy. Let me know how everything goes*hugz* scream that's horrible! stupid a** drunken people starting fights!! it's not fair, i would have been so angry if my kid woke up because of them and wouldn't go back to selep........ahh!!! *smacks the drunken people around* i hope you get some zzz's today..........i'm happy to hear he's feeling better....and thanks for the luck! take care hon! i gotta jet..........*hugz ya bunches* yes well the cops i called (all 5 cars of them ) took care of it but im still sooo mad all the cops did was break it up and leave stressed glad to see my tax dollars hard at work gonk oh well eric napping so im gonna slip a nap in too xd
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Posted: Sat Dec 04, 2004 6:27 pm
hope your weekend is going good so far.....and you're getting sleep........i think my honey did good on his test, he has to wait 2-3 weeks to find out how well he did......ugh, the agony of waiting....... gonk ................yeah, wonderful cops......... rolleyes .............i'm sleepy, it was hard taking the baby on a road trip.....i wish we could have taken his swing....... crying
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Posted: Sun Dec 05, 2004 12:50 am
Angelique~Yuna hope your weekend is going good so far.....and you're getting sleep........i think my honey did good on his test, he has to wait 2-3 weeks to find out how well he did......ugh, the agony of waiting....... gonk ................yeah, wonderful cops......... rolleyes .............i'm sleepy, it was hard taking the baby on a road trip.....i wish we could have taken his swing....... crying road trip? i bet trips are hard and i hate waiting. Im dreading wed. cause eric has to have his muscle test done that day. Its so barbaric..they stick little needles in each muscle one by one and zap em it feelslike when you go to plug in a light and you get zapped. But they say itll help with finding out whats going on. Ihope everything comes back good on your end.Im gonna go to bed now night
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Posted: Sun Dec 05, 2004 10:19 am
omgosh, that poor kid....that sounds horrible........ crying crying ...and poor you hon, you have to be there to watch him go through all that.....that's not fun for you at all............ crying *hugz ya and eric* i'm so sorry....i hope you guys find the awnsers you're looking for.........i'll brb later, ben's so fussy right now.......i'm here for ya
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Posted: Sun Dec 05, 2004 8:07 pm
Angelique~Yuna omgosh, that poor kid....that sounds horrible........ crying crying ...and poor you hon, you have to be there to watch him go through all that.....that's not fun for you at all............ crying *hugz ya and eric* i'm so sorry....i hope you guys find the awnsers you're looking for.........i'll brb later, ben's so fussy right now.......i'm here for ya aww poor ben ...good trick for fussy babys... wrap him really snug but you may wanna leave the hands /arms free then lay him across your knees on his belly and move your legs side to side while rubbing/patting his back ..which ever he prefers or wrap him cradles him in your arms and sway dramatically from side to side slowly ...make sure its dark and usually singing(they dont care about your voice trust me) or faintly shhhing helps it recreates the conditions in the whomb and is extremly soothing . It still works on eric xd hope it helps
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Posted: Mon Dec 06, 2004 7:45 am
ohh, i'll have to try that! thank you!......he's sleeping at the moment....today we will go see the ear nose and throat person to find out what's going on with his ears....i hope it isn't deaf in one of his ears.......i worry about that......... sweatdrop
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Posted: Mon Dec 06, 2004 3:11 pm
well here's an update......ben has to get tubes in his ears, and evidently i'm lucky to have found a doctor that believes in doing that because his case work for ECI (early childhood intervention) told me that some doctors don't believe in doing this becuase it doesn't matter anyway, since he has downs.......i was outraged to hear that.....i can't believe some people would discriminate against people that have disabilities.....grerrrr.......... scream ........i'm not sure when the surgery will take place, she (the doctor) has to fit us into her schedule to do it, it will only take 20 minutes to do it.........(wow so quick!)......so that's about it............
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Posted: Mon Dec 06, 2004 6:39 pm
Angelique~Yuna well here's an update......ben has to get tubes in his ears, and evidently i'm lucky to have found a doctor that believes in doing that because his case work for ECI (early childhood intervention) told me that some doctors don't believe in doing this becuase it doesn't matter anyway, since he has downs.......i was outraged to hear that.....i can't believe some people would discriminate against people that have disabilities.....grerrrr.......... scream ........i'm not sure when the surgery will take place, she (the doctor) has to fit us into her schedule to do it, it will only take 20 minutes to do it.........(wow so quick!)......so that's about it............ yeah i know its really quick....im glad evrything is pretty well. Ill write more later 3nodding
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Posted: Wed Dec 08, 2004 5:01 am
well i go in this morning at 7am and ben will get tubes in his ears.....god my husband is such a crab this morning! so hard to deal with.......... gonk crying .......i'll let you know how surgery goes
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Posted: Wed Dec 08, 2004 8:50 am
well we are done, everything went well, and the little guy is sleeping right now thank goodness..........=) xp
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Posted: Wed Dec 08, 2004 11:41 am
glad to hear he's doing well after the surgery!
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Posted: Wed Dec 08, 2004 1:08 pm
Angelique~Yuna well we are done, everything went well, and the little guy is sleeping right now thank goodness..........=) xp om glad hes doing well. Eric had his muscle tests today sweatdrop its wasnt too bad it took about an hour ...they use a needle like when they draw your blood...OUCH...but he didnt care to much...which they said is wierd...but im glad it wasnt too stress ful for him and good news is its not muscular dystrophy or a fast progressing disease like that... bad news it points to hypertonic cerebral palsy and brain damage which is messing up his perceptions neurologically, sad but we guessed that. They also said its probably like 100% due to his traumatic birth gonk so we follow up with mda clinic in early january and they guy from buffalo wheelchair is coming tomorrow to fit him for his new wheelchair that will recline and such so yay!because hell finally have a proper and comfy wheel chair xd I hope everyones kiddos are well. And give ben a big hug and you too for being so brave 3nodding biggrin heart
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