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 Posted: Thu Sep 14, 2006 4:33 pm
Do any of you have parents who get frustrated with you on your disabilty? My mom has UC too so she understands, but my dad is really hard on me and it hurts. I know it's because he loves me and he's scared, and my doctor mentioned an illiostomy(removal of the colon) and is starting to use the words chron's and uc interchangibly but it is still painful to me.
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Posted: Wed Sep 27, 2006 8:56 pm
EDS runs in my dad's side of the family and I deal almost exclusively with my mom's side. Needles to say, they just don't get it.
My mom's gotten better about it- I've trained her how to make my neck behave sometimes. But she doesn't understand a lot of it. Most of the rest of that side of the family still doesn't understand why I'm not on a sports team.
A lot of the time, their attitude is sort of 'ignore it and it'll go away'.
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Posted: Sun Oct 01, 2006 10:12 am
They try but sometimes they just don't get it neutral I got told my my mother that she was "Fed up this/me" when I became upset because of college, mostly because of it's arrogance neutral
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Posted: Mon Nov 20, 2006 7:01 pm
Actually, I've had a bit more contact with my dad's side lately, which is kind of good. Some of them don't just understand EDS, they have it - we shared jokes about falling all over the place and carrying ace wrap everywhere. It was kind of a breath of fresh air.
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Posted: Thu Nov 23, 2006 3:16 am
Humor is the only way through x.x
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Posted: Tue Jan 23, 2007 3:26 pm
lili of the lamplight we shared jokes about falling all over the place and carrying ace wrap everywhere. It was kind of a breath of fresh air.
My family on both sides is pretty cool, if something new comes up they'll ask questions, me and my make some jokes, and then thats it.
My dad still doesn't get how we can make so many jokes but, it get us threw.
My dad on the other hand wants everything to speed up with the healing and get done with.
But since he was diagnosed with MS last year, he's sorta understanding that sometimes not everything goes away.
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Posted: Sun Aug 05, 2007 8:40 pm
My parents are really good about it but they don't get that I don't want to talk to them all the time or that I want to be treated normally. Though they are the least protective of all my friend's parents. Still supplying me with 2 water bottles if I'm going out just for an hour and making sure I drink them is a bit excessive. The hematologist said to stay hydrated not to drown myself in fluids. rolleyes
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Posted: Sun Jul 06, 2008 3:05 pm
my parents are cool,
they're trying best they can so I can get things just like any normal kid
well, I don't have EDS though, I'm just in wheelchair
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