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Posted: Tue Feb 12, 2013 12:39 pm
HH-Prinzessin MiracleRayray2 HH-Prinzessin Wow. D:> So living with this sort of condition, how does it affect your daily life? I cant play sports. but i am used to that. I have a yearly Check up at U of M Motts childrens hospital. I am on a morning med to keep my heart rate down and a night one for my heart valve. other then that I am fine! Thanks for asking. Ah I see! If I met someone else who had this or another similar condition, what would be something specifically encouraging to them? All depends on the person..Get to know them first. some honestly don't like talking about it unless they have too. I love talking about it and sharing what God has done for me. a person with my heart condition 9 times out of 10 they will also have down syndrome on one side and cant walk or talk. so it is noticeable and that why they dont like to talk about it. doctors say i am rare. I can walk and talk and I look like I dont have a heart disease. so as for encouraging another person....(if there open to talk about it) say something like I never been though your particular situation but there are other out there that struggle just like you. your not the only one. (I have even needed a reminder like that once in a great while.
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Posted: Tue Feb 12, 2013 2:20 pm
Thank you! I'll remember this for sure. ^^ MiracleRayray2 HH-Prinzessin MiracleRayray2 HH-Prinzessin Wow. D:> So living with this sort of condition, how does it affect your daily life? I cant play sports. but i am used to that. I have a yearly Check up at U of M Motts childrens hospital. I am on a morning med to keep my heart rate down and a night one for my heart valve. other then that I am fine! Thanks for asking. Ah I see! If I met someone else who had this or another similar condition, what would be something specifically encouraging to them? All depends on the person..Get to know them first. some honestly don't like talking about it unless they have too. I love talking about it and sharing what God has done for me. a person with my heart condition 9 times out of 10 they will also have down syndrome on one side and cant walk or talk. so it is noticeable and that why they dont like to talk about it. doctors say i am rare. I can walk and talk and I look like I dont have a heart disease. so as for encouraging another person....(if there open to talk about it) say something like I never been though your particular situation but there are other out there that struggle just like you. your not the only one. (I have even needed a reminder like that once in a great while.
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Posted: Tue Feb 12, 2013 2:44 pm
Hey, I was reading and these verses were illuminated to me. Thinking about how not only is there this heart condition but many other ailments.
Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day. For our light affliction, which is but for a moment, is working for us a far more exceeding and eternal weight of glory, while we do not look at the things which are seen, but at the things which are not seen. For the things which are seen are temporary, but the things which are not seen are eternal. (2 Corinthians 4:16-18 NKJV)
I think it's interesting how we (or maybe just me x.x) get disheartened or queazy inside thinking about one who has to go through illnesses or hard circumstances, but mainly because I've never been given it. I find myself meeting so many people in your situation, doing impossible things for God and further impacting me with their grace. That's the compensation, I think. God gives you grace. smile
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Posted: Tue Feb 12, 2013 4:49 pm
HH-Prinzessin Hey, I was reading and these verses were illuminated to me. Thinking about how not only is there this heart condition but many other ailments. Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day. For our light affliction, which is but for a moment, is working for us a far more exceeding and eternal weight of glory, while we do not look at the things which are seen, but at the things which are not seen. For the things which are seen are temporary, but the things which are not seen are eternal. (2 Corinthians 4:16-18 NKJV) I think it's interesting how we (or maybe just me x.x) get disheartened or queazy inside thinking about one who has to go through illnesses or hard circumstances, but mainly because I've never been given it. I find myself meeting so many people in your situation, doing impossible things for God and further impacting me with their grace. That's the compensation, I think. God gives you grace. smile I had to stop and re read this verse. I am still reading not because i confused but because...hmm...can't explain it in words. smile Thanks for sharing it though. it now underlined in my bible.
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Posted: Fri Feb 15, 2013 6:30 pm
MiracleRayray2 HH-Prinzessin Hey, I was reading and these verses were illuminated to me. Thinking about how not only is there this heart condition but many other ailments. Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day. For our light affliction, which is but for a moment, is working for us a far more exceeding and eternal weight of glory, while we do not look at the things which are seen, but at the things which are not seen. For the things which are seen are temporary, but the things which are not seen are eternal. (2 Corinthians 4:16-18 NKJV) I think it's interesting how we (or maybe just me x.x) get disheartened or queazy inside thinking about one who has to go through illnesses or hard circumstances, but mainly because I've never been given it. I find myself meeting so many people in your situation, doing impossible things for God and further impacting me with their grace. That's the compensation, I think. God gives you grace. smile I had to stop and re read this verse. I am still reading not because i confused but because...hmm...can't explain it in words. smile Thanks for sharing it though. it now underlined in my bible. LOL sorry I used... a complicated version. Here's a better translation, (looked up versions ...there's like 20 different ones O_O) "16 That is why we never give up. Our physical body is becoming older and weaker, but our spirit inside us is made new every day. 17 We have small troubles for a while now, but these troubles are helping us gain an eternal glory. That eternal glory is much greater than our troubles. 18 So we think about what we cannot see, not what we see. What we see lasts only a short time, and what we cannot see will last forever."
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Posted: Fri Feb 15, 2013 7:18 pm
HH-Prinzessin MiracleRayray2 HH-Prinzessin Hey, I was reading and these verses were illuminated to me. Thinking about how not only is there this heart condition but many other ailments. Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day. For our light affliction, which is but for a moment, is working for us a far more exceeding and eternal weight of glory, while we do not look at the things which are seen, but at the things which are not seen. For the things which are seen are temporary, but the things which are not seen are eternal. (2 Corinthians 4:16-18 NKJV) I think it's interesting how we (or maybe just me x.x) get disheartened or queazy inside thinking about one who has to go through illnesses or hard circumstances, but mainly because I've never been given it. I find myself meeting so many people in your situation, doing impossible things for God and further impacting me with their grace. That's the compensation, I think. God gives you grace. smile I had to stop and re read this verse. I am still reading not because i confused but because...hmm...can't explain it in words. smile Thanks for sharing it though. it now underlined in my bible. LOL sorry I used... a complicated version. Here's a better translation, (looked up versions ...there's like 20 different ones O_O) "16 That is why we never give up. Our physical body is becoming older and weaker, but our spirit inside us is made new every day. 17 We have small troubles for a while now, but these troubles are helping us gain an eternal glory. That eternal glory is much greater than our troubles. 18 So we think about what we cannot see, not what we see. What we see lasts only a short time, and what we cannot see will last forever." Thanks smile
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Posted: Fri Feb 22, 2013 8:00 pm
I feel in my heart god want's me to do announcements passing on wisdom, please enable me to do so? No since in making multiple thread.
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Posted: Sat Feb 23, 2013 4:34 pm
Dawn Landers I feel in my heart god want's me to do announcements passing on wisdom, please enable me to do so? No since in making multiple thread. Pm me and lets chat about this......
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