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 Posted: Mon Jan 03, 2011 5:14 am
I'm just wondering who else around here has to deal with issues of Chronic Pain? I'm of course not just referring to people who are in absolute agony literally all day every day... Anybody who has to deal with any sort of physical discomfort on any sort of regular basis over an extended period of time technically suffers from "Chronic Pain".
This is something I don't think I've ever seen discussed on Gaia before, probably because the younger people are, the less common Chronic Pain is, but I'm sure I can't be the only person on Gaia who struggles with Chronic Pain. & I'd definitely like to hear from some other people in Burn with whom physical pain is one of their biggest issues (or at least just one of the things they have to deal with regularly/semi-regularly)... I've really found that only people who experience physical pain on a frequent basis can understand at all what it's like to have to deal with that, & how it's not nearly such a "non-issue" as other people tend to perceive it as.
If you currently suffer from chronic pain, or ever have in the past -- What sort of pain have you had to deal with on a regular basis? What caused your chronic pain (if you know & feel comfortable sharing), & how long did it/has it lasted for? &, most importantly, how do you cope with it? What have you found helps you deal with & function normally during your times of pain the most?
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Posted: Mon Jan 03, 2011 5:33 am
I suffer from Fibromyalgia. I have sine I was about 13 (and I'm almost 20 now). I'm in almost constant physical pain and discomfort in my entire body. I tire easily and I'm usually weak. I also can't stand the cold because it intensifies my pain.
I just cope. I pull myself out of bed, I stretch, I walk, I eat right...I do things I enjoy. When I gets bad I have pills that lessen the pain, or make it so I just don't care about the pain. Over time, I just developed a high pain tolerance, the only time it gets bad is when I reach a ten on my new pain scale. That's when I take the pills, which I take Tramadol. Since years have opiates, stuck me with a bad opiate allergy.
Sometimes, I'll lose it emotionally, since the Fibromyalgia gives me seizures and insomnia...but I just cope. My family is helpful, so are my friends. I have a lot of support.
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Posted: Mon Jan 03, 2011 7:33 pm
meh... I've got a hunched back, that's always aching. I've never had a real massage, and I just deal with I've recently started taking Yoga, but I stopped because I found that having "good posture" was even more uncomfortable for me... I felt weak, and tired all the time cause of the looseness and flexibility. so I invented "anti-Yoga." xd
I have realy loose teeth and sensitive gums. apparrently, their inflamed and have been for as long as I can remember, but I honestly can't imagine them being less swollen. o_O; that would look... unnatural to me... my jaw always aches, and I grind my teeth alot. my jaw gets tired, and sore.
arthritis runs in my family, and I'm no exception. even Radha is starting to get it, and she's only 11.
I have Klinefelter's Syndrome, and Ovaries. my Hips are very unique in shape, and I have a serious and constant pain where the connect to my Legs, and to my Back.
and finally I have a permanently damaged left Leg. I got into a bad accident while drunk one weekend, then the very next day I ended up in a fight with my ex-mistress when she came to kidnap my babies that she gave birth to. nasty custody battle, and I ended up with a bullet in my Ribs and one in my Thigh. after a couple weeks of recovery, I got beat up at the Mall by a couple of teenage gangsters, until the Security Guard came and rescued me. that was a very unlucky month for me.
so yeh. Chronic Pain. xp yay.
I pretty much take painkillers whenever I can. Ibuprofen for the inflammation, Midol or similar things for the actual pain, and occaisionally Opiates at parties. I can't always have these things though, so I also just try to ignore it when I can.
the thing I hate th emost about it, is not even the pain. just the fact that I can't keep up being active when I want to. my Friends want me to dance with them and I can't do that for too long at a time. people try to glomp me, and I push them off. I can't always stand at attention when I have to. and doing gruntwork becomes difficult because I'm too desperate for work to tell my employers about it, and get alot of yells for not working hard enough after a couple hours...
I have to hide my weakness whenever I leave the house, so I force myself not to limp. that tend to leave me exhausted quickly. and now, my Semester Bus Pass is about to expire... if I can't hide my limp, nobody will hire me, and I might get attacked again. another thing I do for that, is carry around a boxcutter everywhere.
Shan hates the way my back curves.... she loves me for it, but she's always so worried. she always used to do this thing where she layed her head against my back, and kissed it, and ran her hands on it... ^///^ she made me feel worshipped. it was nice.
meh... :shrugs.: I dunno, I admittedly can't help thinking about it all the time, I always feel it... but I'm never realy bothered by it, beyond being generally bothered by it. like... it's painful, but normal.. ya know? just my little something to complain about when I'm having a bad day.
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Posted: Mon Jan 03, 2011 9:53 pm
Hester Peche I suffer from Fibromyalgia. I have sine I was about 13 (and I'm almost 20 now). I'm in almost constant physical pain and discomfort in my entire body. I tire easily and I'm usually weak. I also can't stand the cold because it intensifies my pain. I just cope. I pull myself out of bed, I stretch, I walk, I eat right...I do things I enjoy. When I gets bad I have pills that lessen the pain, or make it so I just don't care about the pain. Over time, I just developed a high pain tolerance, the only time it gets bad is when I reach a ten on my new pain scale. That's when I take the pills, which I take Tramadol. Since years have opiates, stuck me with a bad opiate allergy. Sometimes, I'll lose it emotionally, since the Fibromyalgia gives me seizures and insomnia...but I just cope. My family is helpful, so are my friends. I have a lot of support. oh, Gods, I know what you mean about the damn cold! gonk everything feels worse when you're cold. >.<
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Posted: Mon Jan 03, 2011 10:01 pm
Chieftain Twilight Hester Peche I suffer from Fibromyalgia. I have sine I was about 13 (and I'm almost 20 now). I'm in almost constant physical pain and discomfort in my entire body. I tire easily and I'm usually weak. I also can't stand the cold because it intensifies my pain. I just cope. I pull myself out of bed, I stretch, I walk, I eat right...I do things I enjoy. When I gets bad I have pills that lessen the pain, or make it so I just don't care about the pain. Over time, I just developed a high pain tolerance, the only time it gets bad is when I reach a ten on my new pain scale. That's when I take the pills, which I take Tramadol. Since years have opiates, stuck me with a bad opiate allergy. Sometimes, I'll lose it emotionally, since the Fibromyalgia gives me seizures and insomnia...but I just cope. My family is helpful, so are my friends. I have a lot of support. oh, Gods, I know what you mean about the damn cold! gonk everything feels worse when you're cold. >.< I know! It's terrible like a million sharp pin pricks and then when you try and warm up the heat makes you feel like you're on fire and your blood is boiling! Though I have numbness in my toes so I have to watch out for the cold. My feet turn purple...
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Posted: Mon Jan 03, 2011 10:07 pm
Hester Peche Chieftain Twilight Hester Peche I suffer from Fibromyalgia. I have sine I was about 13 (and I'm almost 20 now). I'm in almost constant physical pain and discomfort in my entire body. I tire easily and I'm usually weak. I also can't stand the cold because it intensifies my pain. I just cope. I pull myself out of bed, I stretch, I walk, I eat right...I do things I enjoy. When I gets bad I have pills that lessen the pain, or make it so I just don't care about the pain. Over time, I just developed a high pain tolerance, the only time it gets bad is when I reach a ten on my new pain scale. That's when I take the pills, which I take Tramadol. Since years have opiates, stuck me with a bad opiate allergy. Sometimes, I'll lose it emotionally, since the Fibromyalgia gives me seizures and insomnia...but I just cope. My family is helpful, so are my friends. I have a lot of support. oh, Gods, I know what you mean about the damn cold! gonk everything feels worse when you're cold. >.< I know! It's terrible like a million sharp pin pricks and then when you try and warm up the heat makes you feel like you're on fire and your blood is boiling! Though I have numbness in my toes so I have to watch out for the cold. My feet turn purple... you've no idea how many times I've come inside from the cold and put my hands under the hot water, already knowing that they're gonna swell like a mother ********... sweatdrop I do it anyway, and then can't do anything with my hands cause of it. xp
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Posted: Mon Jan 03, 2011 10:27 pm
Are you hoping for a miracle?
As the ice caps melt away.
Now I guess mine isn't as bad as most peoples here, but I have ruined my shoulder. I tore part of the muscle and it never healed right. Now it doesn't hurt everyday, but there are days where it hurts so bad that I just want to go die. I also have a really bad tooth pain, but that goes away with orajel....damn dentists...putting holes in my teeth :/
No use hoping for a miracle.
There's a price we'll have to pay.
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Posted: Tue Jan 04, 2011 2:09 pm
i have fibromyalgia, chronic tension causing pain in my jaw & head, and worst of all i have something comparable to fibromyalgia because the source is the muscles, but what happens to me is that my muscles cause the nerves on my skin to overreact. i've been going to doctors about this for 6 years, and only this past year did a doctor figure it out. i don't even think there's a name for it; every doctor i visited said they'd never seen or heard of anything like it before. i usually just feel a mild, itchy sort of pain, but some days i feel like i'm on fire, being clawed at, or being stabbed by trillions of needles. oh, i've had all three of these things for about 6 years now, by the way (since that was asked.) they all seemed to hit me at the same time. i think some of the pain i started feeling 6 years ago was because that was when my depression began, and my chronic jaw tension may be partially caused by my constant anxiety, but other than that... i don't really know what caused anything. bad luck, i guess? ahahah.
as for coping... i just try to relax as much as possible when it's really bad, and i usually wear super soft clothes for my skin (and on days when it's really bad, i'll just throw on a really lightweight, baggy t-shirt and pair of sweatpants.) and... i try my best not to cry, i guess. it's just going to be worse if you cry and people around you start making a scene over it, y'know...
i try to think of things i'm looking forward to in the future to get past really rough moments or days. i try to avoid running around or straining myself too much when i don't have to or when i'm with friends, or going anywhere that might spark my anxiety and cause me to tense up and feel worse.
but like i said, relax. i think that'd be the best for everyone in here. and if you can meditate, do it! if you can't, try it! it'll really help you take your mind off your pain. i think there's a treatment basically like that where you go to a center and get hooked up to a machine and learn to tune in to certain brainwaves that draw your attention away from pain, but i don't remember the name of it...
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Posted: Tue Jan 04, 2011 3:31 pm
huh, I'll have to look that up. o.o sounds interesting.
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Posted: Tue Jan 04, 2011 4:05 pm
yeah, i know it exists because i was offered that as a treatment a couple years back, but i declined because i wanted to focus on treating my depression. i'll probably try it soon though... nothing to lose, right? ahah.
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Posted: Tue Jan 04, 2011 5:00 pm
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Posted: Tue Jan 04, 2011 5:31 pm
You already know, Kayla, but, I deal with head pain and have for over a year now. Nothing makes it better and some treatments make it worse. I usually cope with it by trying to ignore it, and, if it gets terrible(to the point where my head is pounding, I feel dizzy, it makes the back of my neck hurt, etc) then I usually just cry. It makes it worse, but it makes it a bit easier to fall asleep. It doesn't really interfere with anything, except it makes me feel a bit dizzy when I run or stand up. It does, however, make it extremely difficult to sleep, and the pains get bad at night and cause me to wake up a few times, and when I wake up my head and eyes hurt a lot. I just try and ignore it, though.
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Posted: Tue Jan 04, 2011 6:23 pm
aw, i'm so sorry.
have you tried antidepressants as treatment for it? my aunt had chronic head pain, and taking those helped her a lot.
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Posted: Tue Jan 04, 2011 10:51 pm
Well I'm not sure what the definition of chronic pain is, like if its arthritis or anything. I do have pretty bad knees though, like they start to hurt if I hike or go up stairs for a long time.
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Posted: Wed Jan 05, 2011 12:35 pm
Well...back pain is a common thing for me. That's cause my bone is all twisted and stuff. Haha Usually this happens when I am sleeping and wakes me up at some point. It became a problem in middle school and I had to deal with weird preventive measures until the end of high school.
Nowadays, if I sit up straight in a comfortable way that aligns my back "right" then the pain goes away after a while.
Does asthma/allergies count? I mean I still have moments were I can't breath well and there is pain in my chest. I had them (so we found out) in middle school, but in high school they sudden got really bad and...so now they are mellow enough for me NOT to take meds everyday.
I just drinking hot tea or eat hot soup or put a hot cloth on my throat and finally take medicine if it doesn't naturally get better. Oddly enough...soaking in hot water or sitting in a sauna suffocates me. Maybe I just get overloaded.
A few years ago I started getting pressure migraines. One time I didn't take medicine soon enough and it made me throw up...it was that bad. Haha
Sometimes I can sleep it off but usually I HAVE to take medicine almost immediately or my brain will explode.
In general, I am extremely tolerant to the point that my mother would freak out if I started to mention that something hurt a little (when I was younger). Usually it involved a trip to the emergency room.
The migraines are the most painful for me (nowadays) because I feel like my head is gonna explode and I can't do anything at all unless I take some pills. It's quite annoying...
You would think not being able to breath would be more painful for me but I think I'm just used to that...kind of sad.
But all that isn't that bad...it's not 24/7 pain and having almost died twice is no biggie...I mean I survived soooo yea. ^_^
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