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bittersweet and evocative
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 Posted: Sat Aug 15, 2009 2:37 pm
Kira, I'm so sorry to hear about your fellow senior student at school. I'm praying for you, their soul and their family, as well as the rest of your year group at school. For the student concerned, I do hope they mention it at school, even just in passing, because I think it's important for people to see how precious life is and how it can suddenly be taken away, from the most unlikely of people. I am actually just off to church, so I am going to ask my head Pastor, and the Elders, if they can pray, also. I hope that's ok. I'm also sorry to hear about your friend and the way she's acting. I think girls behave at times so much worse than guys, with their fist fights. I think that that's less damaging than the words girls use to hurt people. I have been there. I am there at the moment, so I'm thinking of you. Anyway, I do hope that everyone is having an ok day. I was up until 4am with pain, and talked with my friend to pass the time, so today seems like it may be a long one. I'm hoping that it will be ok though, because my conversation was awesome with my friend. xx Bless, Ailsa xx
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Posted: Sun Aug 16, 2009 4:02 pm
AuntieSocial 8B Here's some true pre-pubecient humor that happened to me in the 6th grade:
Once in 6th grade something was I though something was seriously wrong with me because when i would sit down and try to get up my tailbone area would hurt reaaly bad. I would tear up every time the bell rang to go to the next class because it hurt that bad to get up.
My mom and i though i fractured it.
Well, my mom took me to some doctor and he took like a million xrays,
He came to the conclusion that my Bum was getting bigger, and my hips were getting wider (that's exactly what every 11 year old girl wants to hear, NOT!). And he also said no rough activities.
He told me to take alieve and i'll bbe fine. i was like WHAT!?!?! all that and it's beacuse i'm a growing kid? how out rageous.
ohkay that story may not be that funny, but i was thinking about all the random stuff that has happeend to me before and that was the only one i could think of that dealt with pain. And I thought it would be some nice light humor, (not saying pain s funny) The pain was excrusating. i can never imagine pain like that all over my body!
my prayers go out to everyone.
Happy Thursday,
AS 8b
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Posted: Sun Aug 16, 2009 4:05 pm
Madralyn I'm going to have to make a list of the many things I want to contribute here! I'm not at a point that I can read back too much but the couple of pages I read sure made me aware of how involved each of our lives can be and that making time for one another here helps living through our individual health hurdles a little less high. A friend once shared that she cannot always see the brightest or happy moment nor does she want to be cheered up but, knowing that there are others who will listen gave her the gift of feeling less alone with what she's going through. This is the gift of Hug Soft, Love Strong. Thank you for being so honest, trusting, and supportive of one another. The fact we can share our lives without forcing another to see things exactly as we do is a gift.
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Posted: Sun Aug 16, 2009 4:54 pm
I was reading and I saw that Ailsa has a boyfriend? I do too, and he is such a sweetie! If I sit for too long, my bad knee will not let me stand back up too fast (PAIN PAIN PAIN) and he will usually carry me out of the chair. He sometimes carries me everywhere! lol. So cute, and understanding.
And yes, Ailsa, I was ran over by some idiot kid on a bike. And boldie was right, I am accident prone!!!
it's okay that you shortened my user!
Be Happy!!!
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A_Wolf_Drowning_In_Blood Crew
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bittersweet and evocative
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Posted: Mon Aug 17, 2009 12:13 am
Wolf, I do indeed have boyfriend. He is lovely and lights up my life every day, no matter how bad it has been. I'm so glad that you have found someone who cares for you and helps you when you're in pain. I think that's what everyone needs.
Boldie, you are right when you said to Madralyn that I appreciate her words of comfort. I do so so much. This thread has become an amazing source of comfort and hope. Thank you all, from the bottom of my heart.
Today has been tiring, and a little overwhelming, so I think I'll head off now. Oh, Boldie, I sent you a PM just before, so that should be waiting for you in your inbox >< Thank you so much for letting me talk to you <3
xx Ailsa xx
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Posted: Tue Aug 18, 2009 10:15 am
Ailsa, It is truly a pleasure speaking with you. And thank you for the wonderful picture of you. I have as of yet to give you one. I just haven't had the time. I'm in real bad shape.... I was hardly on at all yesterday, and today, I feel even worse. I called the doctor to see about this new pain med, because it isn't working like I thought it would and I have so much break-through pain, it's unbelievable. I can't even get comfortable on the couch anymore! And today,.... I feel is I'm just here to do what I have to do, and that's it. You won't see me anymore today... Sorry guys... Best of my love goes out to ya'll.....
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Kira-fightingdreamer Crew
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Posted: Tue Aug 18, 2009 2:45 pm
Ailas, thank you for your thoughts and prayers, they really do mean a lot to us as his friends and his family. I hope you're doing okay today.
Boldie... I'm sorry to hear that your new pain medication isn't pulling through and working as well as you thought it would, that must be terrible! I hope the doctor fixes that up soon so that you can start resting without so much pain..
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Posted: Tue Aug 18, 2009 6:50 pm
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A_Wolf_Drowning_In_Blood Crew
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Posted: Tue Aug 18, 2009 7:23 pm
good point Wolf, i pondered that at one point too.
but i came to understanding why this thread is only dedicated to cronic pain.
when i wondered why was it kinda like pain pain pain. and i thought it would be a nice things to lighten things up by making small talk (did not go very well) boldie explained it was mainly for cronic pain. Then i understood that people who sahre a common bond that nobody else really understands want to vent. And they can give tips and support that maybe other people can't really give them. =)
It's their way of venting and it's a great thing that was started here!
Even though i do not have cronic pain, I do want to thank Boldie64 for starting this wonderful thread! Because i have gotten to meet other people like my aunt. she was the only one who i have known to have cronic pain.
I never knew (i'm not kidding you) that other people had RSD.Of course i saw pictures of people and hear about waht RSD was, i just never had conversations with other people. =)
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Posted: Tue Aug 18, 2009 9:57 pm
as8b - I understand how you felt about not knowing anyone had RSD. I went through 50 months of having it before I even heard about someone suffering from the same condition, let alone talking to them. 53 months since my diagnosis, I have still yet to meet anyone with it, and this thread is the closest I've got to having that meeting. And let me tell you how amazing this group of people, here in this thread, is. You have ALL got me through some really bad days, and helped me see the light, no matter how small it may seem. Today is one of those days. As some of you may know from my status, I just got home from the hospital, and I really wish I could never have gone, and lived in ignorance for awhile longer. My neurologist is really concerned and now I'm going to be sent through test after test. Again. It began with 11 vials of blood being taken last night. Now I will be getting chest x-rays, a MRI on my spine, and some procedure involving a really big needle, my calf, and bone marrow, which truthfully I don't want to know any more about. The reason for all this? They think there may be a tumour. Or abscess. Or something screwing up my entire nervous system by blocking the pathways, not allowing messages to be sent to the brain, or vice versa. Just fantastic. Like I can cope with all this on top of everything else. I'm going to go now because I feel as if I'm about to either bash my head repetitively against a wall, or start crying hysterically, so I'm going to go for some time out.
Quickly I will say this: Wolf, I don't understand why we have pain. To any degree. Nor do doctors. Not in relation to those of us here with chronic pain, or just in regards to pain in general. I wish that wasn't the case, but it is.
Boldie, I hope those silly meds of yours start working, or that they switch you back onto something that actually WORKS. I'll pray for your doctors, and hope that they will sort something out, and of course, I'll be praying for you, as per usual ><
So long for now. Guess you'll hear from me soon
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bittersweet and evocative
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Posted: Wed Aug 19, 2009 8:03 am
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Posted: Wed Aug 19, 2009 8:57 am
nothing has happened recently... but I was in the Hospital when I was 5 for asthma. I almost died D:
Unfortunately, we had no idea what was happening to me. I was turning blue, my breathing was abnormal, and I was losing consciousness. It was a Mother's Day. Not a great mother's Day present...
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A_Wolf_Drowning_In_Blood Crew
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Posted: Wed Aug 19, 2009 6:07 pm
A_Wolf_Drowning_In_Blood nothing has happened recently... but I was in the Hospital when I was 5 for asthma. I almost died D:
Unfortunately, we had no idea what was happening to me. I was turning blue, my breathing was abnormal, and I was losing consciousness. It was a Mother's Day. Not a great mother's Day present... BLUE?!?!? that's intense man! I bet you were terrified.
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Posted: Wed Aug 19, 2009 9:43 pm
Wolf, that doesn't sound good!! I totally understand what it's like for you not to know why something has occurred. That basically sums up every medical problem I've had in the past 5 years! I fell into a coma, and stopped breathing - not fun. I know it was awhile ago, but those sort of things never leave you, so I'm sending you some hugs.
as8b - thank you for the little animation. It made me smile ><
I thought this was sweet, and so perfect for this thread. I would do anything if it would help those of us here who are in pain, feel that little bit better.
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bittersweet and evocative
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A_Wolf_Drowning_In_Blood Crew
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Posted: Thu Aug 20, 2009 9:40 am
It was scary! But probably not nearly as scary as a coma! O.O
You know... I have to go to school a in a week or two (yuck!) and I was thinking... would it be fun for you guys if I held a "End of Summer" party at my house on Gaia? I know it's kinda off topic, but I just thought it would be fun. I'm trying to find a good date and time (For those who have already started school, and for those who have work!!!)
BACK ON TOPIC!!!
My knee has been acting-up. Again. Doctors say that its a "Foriegn Mass" or whatever. I say its a rock. Just a Rock. No big fancy words... stupid doctors. And my friend is having her own (Real life) "End of Summer" Party and I was invited to go and also to sing. ('Cause apparently I'm a great singer...) I get to chooose the songs!!! YAY. and it's all gonna be off of my playlist which is now on my Profile. But, I don't know if my knee will let me D: stupid knee... Well, it's only Noon here, so I'll probably be back on shortly biggrin
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