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A_Wolf_Drowning_In_Blood Crew
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 Posted: Sat Nov 21, 2009 1:06 pm
Oh my! So many things to say... First off::
boldie:: Yes! I did like that thread you sent me! Very interesting. A little expensive, but sooo cute! I was going to purchase one of the wolfies, and I said so, and while I was waiting to be "vurbaly" opproved, I sent in a trade for a little event the thread was hosting. But when I went back to the thread this morning to send in another trade (since you can only send one at a time...) to buy the wolfie I so dearly wanted, someone else posted that they wanted it and got it. TT-TT i cried a little. But then I told myself that it was just virtual and I wouldn't use him much. And we all know that Life isn't always fair!
It's nice that you could take a walk! Even if it was a short one!
as8B:: Now, don't be thinkin' that I fry turk'! Haha! 'Cause I ain't eat no fried crap. >.< teehee!
crack-a-lakin'... and I thought that I had some crazy slang from the south! Wow! Haha!!! i guess you folk do too.
Alicia:: I know that some of us think that being diagnosed with this stuff is bad, I do too, but after you think about it, you're kinda lucky to be diagnosed. You know what I mean? So if it's right, you can get medication that will make you feel better!!!
Babybear:: Don't worry! It seems that you are in everybody's prayers (The same for everyone here) it seems, so I think that you can pull through all kinds of bad times!
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Posted: Sat Nov 21, 2009 5:01 pm
So stretched for time, I'm afraid I can only manage weekends right now.
Alicia: I have to agree with Lindsy on this one, it's got to be hard getting diagnosed with something new, espeically when going through so much already, but if the doc's can find even one more way to try and help you out then... yeah. >_<
Boldie:~ How're you doing? You sould really busy but it brought a smile to my face when you said you were able to get out that other day to go for a walk. LOL I know that as like.. pages ago but I had to go a ways back to catch up with everyone here! So many posts!
OG LoLo: I love, just absolutely love so much that you're in here. Like, I can't explain why, but you're posts just make me smile. Thought I'd let you know.
Godsbabybear: I don't have any medical conditions that cause me pain, but I want to encourage you to keep talking to your family, both in real life and here (if you consider this beautiful group of people a second family..). So many people here are thinking of you and though your family may not understand I'm sure they love you so so much. Keep fighting, you seem like a strong person heart
Ailsa: Heyy, it's good to see you posting here again. I wanted to say sorry for not getting back to your PM in anything much of a timely manner. Like, at all, so I'll get right on that. But also, wanted to say congrats for working so hard on all of your tests and completely so much work!!
Thinking and praying for everyone heart
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Kira-fightingdreamer Crew
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Posted: Sat Nov 21, 2009 5:15 pm
AliciaLeone Quote: that cool! Have fun!! =) I am good, i am soo glad that this weekend i do not have alot of homework. only math and that takes no effort at all! i have done about 15's of homework this week. Sounds impossible but not. 3- 8 pm three nights in a row! ( and i;m only in high school ). I've been under some stress. my teachers are psycho. KEEP FIGHTING! I've never heard of EDS, it is something i can look up over the holiday! learning something new every day! Random fact: did you know you could fry a turkey? i hear they do it alot in the south and it only take 15 -20 mins.! i like math, i want to be a teacher! =)
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Posted: Sat Nov 21, 2009 5:18 pm
A_Wolf_Drowning_In_Blood as8B:: Now, don't be thinkin' that I fry turk'! Haha! 'Cause I ain't eat no fried crap. >.< teehee! crack-a-lakin'... and I thought that I had some crazy slang from the south! Wow! Haha!!! i guess you folk do too. haha i got crack-a-lackin' from the Movie Madagascarr! ( i love that movie!) Yeah there is a lot of weird slang here! You are from the south? cool, i have never talked to any one from the south! i was watching the travel channel, and it was fried praidise and i heard about fried turkey. lol
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bittersweet and evocative
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Posted: Sun Nov 22, 2009 1:15 am
This is going to be a really short message - sorry guys. I've pulled myself out of the hole long enough to get on the computer, only to receive one of the most upsetting emails I've got in a long time. I feel myself slipping down again - don't you have that feeling? - so I'm going to go instead of boring you all with my nonsense. Anyway, in general news, I went back to physio on friday, only to be told that my CRPS has deteriorated and they highly doubt that it will go back to what it was like, but only get worse. Oh joy. They are now seriously considering the possibility that I have MS, so more tests. Alicia, I understand what it's like to have so much blood taken. There have been times when I've been too weak after they've taken all they need, that I haven't been able to stand for a good period of time. In general, I'm really not in a good place, so I'm heading off to bed now, ready to crawl back into the darkness. Sometimes I just need the dark so that I can pretend that life doesn't exist. I started writing a story last night. Currently I have the first two lines:
Ghandi once said, that at night when we go to sleep, we die. I only wish he didn't go on to say that in the morning we are re-born.
I hope you are all faring better than I, and as always, you are in my prayers. Sorry that this message doesn't really address anyone - I'll work on that for next time.
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Posted: Sun Nov 22, 2009 9:41 am
as8B:: Yes, I am from Kentucky. It isn't exactly WAY south, but we have a distinctive accent.
Ailsa!!!!!!! Don't go into darkness! You know what, I think I should shoot a bright rainbow ray down there... maybe then the darkness will dissappear forever!!!
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A_Wolf_Drowning_In_Blood Crew
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Posted: Sun Nov 22, 2009 11:17 am
bittersweet and evocative This is going to be a really short message - sorry guys. I've pulled myself out of the hole long enough to get on the computer, only to receive one of the most upsetting emails I've got in a long time. I feel myself slipping down again - don't you have that feeling? - so I'm going to go instead of boring you all with my nonsense. Anyway, in general news, I went back to physio on friday, only to be told that my CRPS has deteriorated and they highly doubt that it will go back to what it was like, but only get worse. Oh joy. They are now seriously considering the possibility that I have MS, so more tests. Alicia, I understand what it's like to have so much blood taken. There have been times when I've been too weak after they've taken all they need, that I haven't been able to stand for a good period of time. In general, I'm really not in a good place, so I'm heading off to bed now, ready to crawl back into the darkness. Sometimes I just need the dark so that I can pretend that life doesn't exist. I started writing a story last night. Currently I have the first two lines:Ghandi once said, that at night when we go to sleep, we die. I only wish he didn't go on to say that in the morning we are re-born.I hope you are all faring better than I, and as always, you are in my prayers. Sorry that this message doesn't really address anyone - I'll work on that for next time.
Kira and Lindsy ~ Yes, I agree, knowing is definately better. It helps to know that it is real, not just in your head (I knew that before, it is just firm evidence). Now I have something I can tell people, this is what I have.
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Posted: Sun Nov 22, 2009 3:20 pm
K addressing every1 in order of post:
@Kira -Kira-fightingdreamer OG LoLo: I love, just absolutely love so much that you're in here. Like, I can't explain why, but you're posts just make me smile. Thought I'd let you know.
@AS8B & Wolfsy -AuntieSocial 8B A_Wolf_Drowning_In_Blood as8B:: Now, don't be thinkin' that I fry turk'! Haha! 'Cause I ain't eat no fried crap. >.< teehee! crack-a-lakin'... and I thought that I had some crazy slang from the south! Wow! Haha!!! i guess you folk do too. haha i got crack-a-lackin' from the Movie Madagascarr! ( i love that movie!) Yeah there is a lot of weird slang here! You are from the south? cool, i have never talked to any one from the south! i was watching the travel channel, and it was fried praidise and i heard about fried turkey. lol
@Ailsa - Y did that email get u so upset? U r smart, talented, n caring person - u shouldn't let any1 tell u differently. If u disagree w/ what it said then fight bac w/ words - if not, jus ignore or delete it. Sorry if this is not helpful enuff. I'm jus not quite sure y an email would send u bac 2 the darkness... I wish boldie or Madralyn were here 2 give u more support. But keep fighting GF - u're worth it.
@Alicia -AliciaLeone EDS = Ehlers-Danlos Syndrome
EDS is a family of related diseases all caused by disorders of the connective tissue and collagen. Collagen is the bodies "glue" it holds skin, bones, organs, ligaments, and other such tissues together. In EDS the collagen does not do its job and breaks down over time. It results in extreme hypermobility (Me!), muscle pain (Me!), bruising (Me!), stretchy skin, and many other symptoms that vary depending on what type of EDS you have.
The most common way people know about this disease, is from circus'. The people who dislocate their joints and do freaky tricks, people who either stretch their skin really far or their earlobes really low, and the people who do tricks like fitting into tiny spaces.
Hope u all have a lovely evening w/ no pains. ~XxX~
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Posted: Mon Nov 23, 2009 10:02 am
Hey everybody, I am addressing everyone because I don't have a lot of time. I wanted to leave a message so that no one would worry. 3nodding I am leaving in a few minutes to go to Indiana for Thanksgiving. I won't have very good internet access, but I will answer whenever I can.
Lots of soft hugs and strong love to everyone ><> heart <><
~ Alicia
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Posted: Mon Nov 23, 2009 3:24 pm
AliciaLeone Hey everybody, I am addressing everyone because I don't have a lot of time. I wanted to leave a message so that no one would worry. 3nodding I am leaving in a few minutes to go to Indiana for Thanksgiving. I won't have very good internet access, but I will answer whenever I can.
Lots of soft hugs and strong love to everyone ><> heart <><
~ Alicia
~XxX~
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bittersweet and evocative
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Posted: Mon Nov 23, 2009 11:54 pm
It's weird that you guys are all organising you're Thanksgiving celebrations, because we don't celebrate that here at all. I didn't really know what it was about until recently >< shows you how ignorant I am...
Thank you for all your supportive messages. OG LoLo - the message was from the guy who broke my heart, on the basis that I was sick. It really doesn't make it easy dealing with all of my illnesses when that's the reason why I get left broken. It sounds really pathetic, but I guess it was just the final straw, or whatever the saying is. Alicia, Lindsy, I'm trying to stay as much in the light as possible, but it doesn't seem to be working very well. I'm going to keep trying, though. It's a tough road to travel, but I guess it's our lot, aye? xox
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Posted: Tue Nov 24, 2009 11:29 pm
bittersweet and evocative It's weird that you guys are all organising you're Thanksgiving celebrations, because we don't celebrate that here at all. I didn't really know what it was about until recently >< shows you how ignorant I am...
Thank you for all your supportive messages. OG LoLo - the message was from the guy who broke my heart, on the basis that I was sick. It really doesn't make it easy dealing with all of my illnesses when that's the reason why I get left broken. It sounds really pathetic, but I guess it was just the final straw, or whatever the saying is. Alicia, Lindsy, I'm trying to stay as much in the light as possible, but it doesn't seem to be working very well. I'm going to keep trying, though. It's a tough road to travel, but I guess it's our lot, aye? xox
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A_Wolf_Drowning_In_Blood Crew
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Posted: Wed Nov 25, 2009 11:50 am
Ailsa:: D: I sorry! That's unfortunate! But don't worry. It shouldn't be such a big deal. Since it's not working out, it's gotta be a little weight off your shoulders! Relationships can be stressful ):
Now that I have an item that allows my avitar to throw-up a rainbow... that should help your dark hole shrink!!!
Alicia:: Yes, have a safe (AND FUN) trip!!! <3<3<3<3<3
LoLo:: Howdy 'der! Howya' been?
Buh-bye! <3
--"L"
P.S. I don't have much time to say anything much else, I'm about to go to my hair appointment and then I am going to bed REAAAAL early and goin' huntin' tomorrow!!!
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Posted: Wed Nov 25, 2009 6:48 pm
A_Wolf_Drowning_In_Blood Ailsa:: D: I sorry! That's unfortuanate! But don't worry. It shouldn't be such a big deal. Since it's not working out, it's goota be a little weight off your shoulders! Relationships can be stressful ):
Now that I have an item that allows my avitar to throw-up a rainbow... that should help your dark hole shrink!!!
Alicia:: Yes, have a safe (AND FUN) trip!!! <3<3<3<3<3
LoLo:: Howdy 'der! Howya' been?
Buh-bye! <3
--"L"
P.S. I don't have much time to say anything much else, I'm about to go to my hair appointment and then I am going to bed REAAAAL early and goin' huntin' tomorrow!!!
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bittersweet and evocative
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Posted: Thu Nov 26, 2009 12:37 am
Hello again >< Back after my Latin exam, looking forward to a break before my music (and last) exam on tuesday. After that, I'm facing nearly 4 months of freedom!
Lindsy, OG LoLo, I see where you're coming from with the relationship drama. I guess it's harder because while we were together it felt great, and I did smile for the first time in a long time, but now that it's over, I'm left feeling empty and alone. Cliche, I know, but true. Anyway, I'm watching Criminal Minds at the moment, before I head to bed. I hope you are all having good pain days. Wow, that's an oxymoron. But you guys know what I mean. I hope at least ><
Oh, I just wanted to quickly say thank you to you all for looking after me through this time in my life. It's tough, and without you I wouldn't know what to do. I've been praying in thanks for you (plural you O.o)
xx love Ailsa xx
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