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How many of you experience chronic pain?
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AuntieSocial 8B

PostPosted: Sat Sep 12, 2009 6:39 pm


Boldie! what's happenin' man? how have you been! I hope you are doing good! i haven't talked to you in a while.

have a nice day!~
PostPosted: Sat Sep 12, 2009 10:58 pm


as8b - I'm so glad that my letter has arrived, and that you like the bracelet!! I was talking to Madralyn yesterday, but I'm going to send you a PM, ok?

Wolf - it would be awesome if you trained one of your dogs up to go to hospitals. As someone who's been on the receiving end, animals really do help patients. On days when I was feeling so low I wouldn't speak, they'd bring in a kitten and let it sleep on my bed with me. The animas, I suppose, brought the outside world to us, as we weren't allowed to go outside. Have you inquired as to how much you'd need to train a dog for it to qualify? Because I'm sure there must be programs, and trainers available. Oh, and that is one huge property you live on! I used to want to live on a farm, but with my RSD I can't walk on flat ground, let alone grass ><

To everyone else, I hope you're doing well. I've been doing homework all day, so am looking forward to a chance of just being in awhile. And then I need to prepare myself for another psychologist appointment tomorrow. Boldie - I'm thinking about what you said, but I don't think I'm strong enough for it. I can't even begin to imagine how I'd gather the strength to speak those unutterable words. xx

bittersweet and evocative


D Integrity
Crew

PostPosted: Mon Sep 14, 2009 9:33 am


Ailsa, be strong and in spirit, I will be with you. I can't help myself lately, let alone help someone else, but be strong. I've been having serious pain in my hips, which leaves me not walking. I have crutches, but the doctor wants me to walk things out. Can't--Waaaaay too painful. I hope everything is going well for you. I'm sorry I haven't been on like I used to. The pain is just overbearing.....I really can't talk much about things. They're so bottled up, that I don't feel comfortable yet talking about them. Let's just leave it at that, please, ok?


OOPS! I'm sorry.... This is really Boldie, I just happen to be on the wrong account. OOPS my bad, and I'm sorry. But it really is me. I'm sorry.........
PostPosted: Mon Sep 14, 2009 10:54 am


Boldie: I'm so glad you and Rick are in a better place. I truly hope that the next doctor appointment will help you find some solutions to the problems you are having. You made me sound like such a trooper but, the truth is three months ago what I'm doing now wouldn't have been possible and there are days that it's very, very difficult. Fortunately, with the Savella, these days are further away from one another but will never be gone. I just refuse to give up, I gave 5 years of my life away on medications and on the sofa or in bed; 2 years ago I started to feel the will to fight again after my cancer relapsed. Now 2 years later, God help inspire some genius in a lab that created a medication that is actually working for me. I don't know how long it will last but while it is working in combo with all the other meds I am taking including dilaudid, I will do the things I could not before like getting dressed in the morning and even getting my hair done some days; enjoying my family and taking my kids where they need to go. It could all end tomorrow but for today, I'm living....ironically, today my body needs a day off and it's sending out all the warning signals....ah well, I get to be here with all of you.
User ImageUser Image

Ailsa, I know we've talked privately quite a bit lately but I wanted to address publicly one part of your comments in the past week.

Your academic achievements are incredible, congratulations! More than some realize, I do understand the difficulties between being successful and also being left with a body that doesn't function afterward. For me it's about learning to balance and I think you will find as you move on to University, you may be able to do this a little differently so you can have some body strength left. You are a truly gifted woman and I think we will see great things from you as an Author and Musician.

I also have a question, I know the larger print makes it easier for you to read but, what about the color? Is it easier to read black or dark colors rather than bright colors like this blue?

User ImageUser Image


Wolf, you are a very fortunate young woman to be surrounded by loving animals and to live somewhere big enough for them all. I hope you do certify one of your dogs one day, it's a precious thing for the dog, you and most of all the patients who are rewarded by their visits.

ClosingMyAcct


XxkrylikxX

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PostPosted: Mon Sep 14, 2009 7:04 pm


Hugs to all. and all for hugs!!!!
PostPosted: Tue Sep 15, 2009 1:17 pm


Ailsa:: I do hope to certify one doggie... but who knows. I hear that you are doing well in school? YAY!!! I tried to get into college... but something isn't right... they said I have one more year??? I dunno... it's confusing. Basically I can get in next year... or something. i dunno. Oh well.

boldie:: Oops... lost my train of thought... um... Oh! Found my train again! Sometimes my joints hurt me so badly, I can't do ANYTHING. So I know somewhat of how you feel. Now, Get Better!!! and that was an order, not an option!!!

Madralyn:: Same to you, I hope I get one of my doggies certified. And thank you for the comment on my profile! I appreciate you taking the time to look at it : D

All for now! Maybe I will post in the Avitar Contest... Hm...

A_Wolf_Drowning_In_Blood
Crew


dreamed integrity
Crew

PostPosted: Wed Sep 16, 2009 10:40 am


"L", You are so funny. I am starting to feel somewhat better. Had a real bad spell these last few days, and I think it started when it was raining here in Tulsa. Not to mention what was going on in my mind, I'm better in that, as well. Thank you for all being concerned. Sorry, for all the fuss about me, but when a person is REALLY SUPER hurting, that's all she can do is live within this bubble, until it goes away or eases up. Rick and I are sooooo much better. We will be talking shortly on the way he's been treating me. That's per him. So I can't wait for that conversation to pop up. He said he will tell me very soon, but in his own time. So, I am not pushing. GREAT! It's always good when the spouse backs up the person that's injured. Well, that's enough for me... Oh, crap, again, I'm not under boldie. Poop squares. This is really boldie. I just happened to go to the guild, and then start typing away. Please forgive me. My mind has somewhat left me. God's Blessings to everyone here. Love you all !!!! Love, boldie
PostPosted: Wed Sep 16, 2009 11:14 am


dreamed integrity
"L", You are so funny. I am starting to feel somewhat better. Had a real bad spell these last few days, and I think it started when it was raining here in Tulsa. Not to mention what was going on in my mind, I'm better in that, as well. Thank you for all being concerned. Sorry, for all the fuss about me, but when a person is REALLY SUPER hurting, that's all she can do is live within this bubble, until it goes away or eases up. Rick and I are sooooo much better. We will be talking shortly on the way he's been treating me. That's per him. So I can't wait for that conversation to pop up. He said he will tell me very soon, but in his own time. So, I am not pushing. GREAT! It's always good when the spouse backs up the person that's injured. Well, that's enough for me... Oh, crap, again, I'm not under boldie. Poop squares. This is really boldie. I just happened to go to the guild, and then start typing away. Please forgive me. My mind has somewhat left me. God's Blessings to everyone here. Love you all !!!! Love, boldie


Hey, this is boldie. YESSSSSSSSS, the real me... lol Sorry about being under the guild mule. Sometimes I check it when I'm under one of the guild mules, and forget who I am. *giggles. Everything is cool and going okay, so far. "So far, so good". Just wanted to clarify that up.

boldie64
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A_Wolf_Drowning_In_Blood
Crew

PostPosted: Wed Sep 16, 2009 4:00 pm


Oh, bodie! You are funny yourself! BISCUIT UPDATE:: He has now learned to "crawl"!! YAY!

Haha. (Biscuit is my littlest doggie at 37 pounds)

boldie:: It's good to know that you and Rick are getting along : D
It's funny, 'cause my daddy's name is Patrick (Rick for short). Haha! i wante to go to his house this weekend... but he isn't answering his phonies. *sigh* Oh well. He's probaby busy and all.

Now it's "Me" time! YAY

Hm... well, I am thinking about entering my doggies into Agility. That would be so fun! Most of my babies are well behaved around "strange" dogs, but Biscuit and Street... not so much. Haha!
Oooo... I just realized how off topic that was!!! OOPSIE

boldie: sad again) I know that when it rains here, my mom gets a headache from the difference in air pressure. Is it the same concept with you?
PostPosted: Thu Sep 17, 2009 2:17 am


Ugh, I don't know whether to post it here, or ask you to go to my journal, I don't know if it can count as what this topic is on, but since this is real discussions about real events, i figure I should post it here. I had a dream, that dream is the reason why I'm up at 2:13 in the dang morning. I will check back alter today to see if you guys think I should post it here oor just ask you to go to my journal..

Link to my journal: http://www.gaiaonline.com/j/

Wierd you'd think it'd be longer right? sweatdrop


But other then that, I was recently hospitalized for a few hours. I had an asthma attack at around 3 in the morning. On the 13th, missed school that day. Went to the doc, doc sent me to the hospital, hospital drugged me for half the dang day... I had an asthma attack cause of the wild fires here in cali. I looked at my doctor like he was stupid, then again, i figured I had an asthma attack from second hand smoke of people in a park smoking marijuana.. So I am guessin what happens happens.. Oh well..

Im going to bed. Good night.

XKightX
Crew


A_Wolf_Drowning_In_Blood
Crew

PostPosted: Thu Sep 17, 2009 12:40 pm


Eew... Asthma.... I have that too... but I haven't had an attack ina while (knock on wood!!!) I'm away form smoke most of the time... I live out in the open.

About posting here... Hm... I would say that your post is safe here... I myself do not have severe Chronic things... but Asthma can definitly put a scar on your life.
PostPosted: Thu Sep 17, 2009 6:35 pm


Well, I'm finally back online. I have had one of the worst weeks in w long time, and I've been sinking lower and lower, so removed myself from the world for a little while. School has been insanely busy so I haven't had time to digest what my psychologist told me yet. It was nice being able to come back on and read all the comments, though. Gave me something else to think about, you know?
Madralyn, color is not such a big thing, I find. Except really bright colors like yellow and orange and lime green are more difficult. I'm hoping also that university will give me more of an opportunity of building my timetable around appointments and that sort of thing, cutting me a little bit of stress. I don't really know what I'm going to do for the rest of the year, though, because I'm seriously finding it hard enough to live each day at a time. The prospect of my exams in two months just makes me feel sick, more so than I do already.
Boldie, I hope you're feeling a bit better, slowly but surely. Know that you are still in my prayers and that I'm sending you all the love my heart can muster! I love you xx
I better go because it's only 1:30 and I'm exhausted already. I think it's time for a nap, if I can get to sleep, that is. 40 hours down the track with no proper sleep, and I'm losing momentum.
xx Ailsa xx

bittersweet and evocative


boldie64
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PostPosted: Fri Sep 18, 2009 1:32 pm


Quote:
boldie: I know that when it rains here, my mom gets a headache from the difference in air pressure. Is it the same concept with you?
Yes, Wolf, it does affect me. More than you know. My hips for almost 2 weeks now have really REALLY been hurting me. It hurts to walk; I do have crutches for long walks like going through Target or something like that, but then I just ride in their little scooters, too. That's why "I" haven't been online much. Been in too much pain. Honestly. So, I do apologize for that.
Ailsa, I hope you're doing well, yourself. Just keep pushing forward and try not to think what all is going on in your body. Easier said than done, I know.
I have NOT spoken with Madralyn this week, so I'm hoping to get together with her and talk about updating, changing, making new ? , or just whatever with DI. Don't worry, we'll get to it. Plus, the October Newsletter....... YEA!
Well, that's it for me. Sitting in one spot (lately) is VERY uncomfortable with hip pain. I'll talk to ya'll later, I promise. Hope everyone is having fun, otherwise!
PostPosted: Fri Sep 18, 2009 10:21 pm


Boldie, I wish I could say I was having fun, but at least I'm surviving at the moment. I'm letting things get to me at the moment, because I don't have the energy to ignore it or push through it, but all it's doing is draining me more. I think my spoon collection may have run into debt now. It seems every day when I think "I can't get more tired than I am now" my body wishes to prove me wrong, and steals another night of sleep from me. So I'm off to sit with my friend in an attempt to distract myself from everything. Thankfully she knows that she can't expect too much from me when I'm like this, so I know I won't have to put on a show, or appear happy when I'm around her. I guess that's something to be grateful for. Anyway, Boldie, I hope your hip pain settles down, and I'll say a special prayer for you tonight that God sends you some relief, or at least a sense of comfort & love. Because, I DO love you, and will never stop. Sorry that this message was more directed towards one person, but I'll try to make my next one more general. Love to all of you!! xx Ailsa xx

bittersweet and evocative


A_Wolf_Drowning_In_Blood
Crew

PostPosted: Sat Sep 19, 2009 8:47 am


Ailsa:: Poor spoon collection!!! It's good to know that you have a friend that understands, and that Hug Soft, Love Strong is th ere to give you something else for you to think about.

boldie:: For your hips, is it just really one side? Just curious.


Well, last night had made me VERY tired. didn't get home 'till 10:00pm ish. Still a little tired, youknow that waking up kinda tired? I probably just eed a good meal instead of a pop tart. Haha!
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Hug Soft, Love Strong - real life discussions, support, & friendship

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