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Alpers Disease
crying
I have a grand daughter that has Alpers disease and it is incurable.....she is 6 years old and the longest anyone has live is until they were 10 years old....the first thing it effects is your brain, the next thing is the liver, and lastly, the heart. she is at the stage of it effecting her liver at this point........the bad thing is....is that there is NOTHING I can do.....I feel so useless. Maybe god has a place for her and knows what he is doing....all I can do is hope. I love all of my family so...... heart
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