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Grandpajones' Mindless Rants, Want To Read Them? This Journal will be some thoughts that I have now and then......

Community Member
Alpers Disease

I have a grand daughter that has Alpers disease and it is incurable.....she is 6 years old and the longest anyone has live is until they were 10 years old....the first thing it effects is your brain, the next thing is the liver, and lastly, the heart. she is at the stage of it effecting her liver at this point........the bad thing is....is that there is NOTHING I can do.....I feel so useless. Maybe god has a place for her and knows what he is doing....all I can do is hope. I love all of my family so...... heart

User Comments: [5]
Community Member
comment Commented on: Sun Sep 16, 2012 @ 09:22pm
Awe gramps,I'm soo sorry. crying

comment Commented on: Sun Oct 28, 2012 @ 01:57am
I was wanting to see how you were doing and saw about her, then peeked in here.

Grampsl, my most sincere prayers with you and GrandmaJones. We've been having some times in the family over here, I understand how important family is and I'll be thinking of her and yours.

Much love to all.

-- Crinis heart

Community Member
Community Member
comment Commented on: Sat Nov 23, 2013 @ 05:31am
Sorry to hear this Grandpa Jones.

Grandpa Jones. Do you know that we are our own best doctor? Those Doctors in hospital usually brings fears to patients.

Do you think AIDS is curable? How about cancer without taking medicines/surgery removal? Diabetes? tumors?

All of these are curable with just raw living fresh food (fruits & veggies), but most doctors would tell us otherwise to force everyone believe we have to rely on their medicines to extend a little longer in lives.

I wish your beloving grand daughter is still well and I hope you are healthy too smile stay positive attitudes loving yourself everyday and those who contact with you

From what I understand - the more medicines we takes the worst our bodies will become from those side-effects.

comment Commented on: Thu Mar 27, 2014 @ 04:59pm
I'm really sorry to hear that... I wish there were more I could do for you and your family. Just know I will keep you all in my thoughts and prayers. I have a friend who is going through a similar thing with her son. He has an incurable disorder that is degenerative and the doctors tell her that it will continue to worsen. The longest anyone with his condition has lived is 25 years old. It's so unfair that this has to happen to families anywhere, especially when they have done nothing to deserve it.

All we can do in the end, I suppose, is cherish the happy times, and remember that we're never alone, even if it feels that way sometimes. heart

Hallie Neko-chan
Community Member
Beatrice Arthur
Community Member
comment Commented on: Tue Feb 18, 2020 @ 07:14pm
Hey sexy grandpa

User Comments: [5]
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