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Tags: alzheimers  awareness  lilac  pratchett 
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For those that want to do more - please keep in mind that November is the U.S.'s National Alzheimer's Disease Awareness Month.

Here is an article on it.

And another article with more background on the discovery of the disease.
 
     
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0X0BOOM0X0
wow... i don't know anyone with alt.... but i do know how serious it is

i will wear meh jelly fish and other purple stuffs for a while

(i will only change for the ball)


meh bad... it will b a while but i will get it done... i don't have any purple... sweatdrop
 
     
 
I'm very glad that Gaia is supporting this. I watched my grandma waste away due to this disease. It wasn't easy seeing her not understand where she was or who any of us were. I didn't see much of her when she was like that because it didn't seem like her and she didn't even look the same. She passed away due to Alzheimers 3 years ago. I was sad when she died but also a bit relieved because I believed that she was free after that.

So big thanks to Gaia and the OP for doing this. I also linked to this thread in my sig. heart
     
<3

heys, why don't we try makin our aquariums purple?

ninja fish
jellyfish
pebbles
backgrounds
sharkfin fish thingies
and other stuffs!
 
     
 
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Yeh, sorry I've been inactive!

Want me to have a look for some purple items to give away?

i like this picture
     
kankurousubaku
ID#: 16557424
My favorite grandmother and my aunt (her daughter) both died with Alzheimers.
I remember being so sad the last time I visited my grandma. She had no idea who I was or who my mom (her daughter) was. The last time my aunt came to my house, she was so bad that she didn't know who anyone was. Then she fell off a step that she'd already been up and down a dozen times because she didn't remember that it was there.


Alzheimers can reduce a grown adult to basically a baby. Sometimes they can forget such basic needs as how to eat, how to brush their teeth or even how to use the bathroom. This is truly a sad disease that affects everyone around the person afflicted.
 
     

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0X0BOOM0X0
heys, why don't we try makin our aquariums purple?

ninja fish
jellyfish
pebbles
backgrounds
sharkfin fish thingies
and other stuffs!
.

thats a good idea and oour profiles too! i don't have enough gia cash to make my awuarium purple 3nodding
     


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i will do my bets
Do you know someone who has/had Alzheimers? Let us know their name and they will go here.

Do you have any stories to share about someone who has had Alzheimers? Let us know and we'll post them here as well.

MachaGirl
I will do my best to participate in this event. One of our family friends died from Alzheimer's, and it one of the saddest things I ever had to watch. sad



cloudy_past
I'vgo a story If you'd like.

My great-Grandomther, somking half her life & growing old of age, was put inot a senior care home. We knew she was getting worse by the day. She had cancer I belive & had alztimers (funny, I don't know how to spell it and I'm posting here!).

By about 2006, she was moved again, but this time, to a closer area, so we could visit her more often.

What gave me hope that she was fighting the diseases, was that every time I'd see her, she'd remember me, no matter what. Even through all the suffering, she held on to those close to her & fought to do so.



xX Katie - Kisses Xx

Grandma Bertie has Alzheimer's...

She lived a great life while she still had her memory.

There's this one time my whole family went to visit her and she kept calling my stepmother by my real mother's name.

"Sue? Sue?"
"I'm DORIS, Bertie."
"Isn't this a wonderful reunion, Sue?"

It's sad, but I found it kind of amusing...



Deschaine

The only memory I have of my grandfather is when my dad took me to visit once.
He had no idea who I was, he remembered my Dad but thought of him as being a kid still.
It was really sad for me because I never got to know him.



Rosebud Baby
This is such a great thread.

It is very close to my heart because I worked in the home health field, caring for patients with Alzheimer's. I am now caring for my husband who has been afflicted with the disease.

One thing many people don't realize is there are many types of Alzheimer's. My husband has the Frontal Temperal Dementia. I realized it and the doctors diagnosed him six years ago, at the young age of 59. He gets very aggressive at times, so it can be rough to deal with, but it isn't his fault. I have two teenagers (young adults) and it was very rough on them at first, but they are really a great help now that they understand the disease.

The best thing to do is keep them mentally busy. I immediately started my husband doing things on the computer to keep his mind active. He loves the puzzles here on Gaia and works on them every day. The doctors are thrilled with this because his progress has been slow. Some people believe I am being mean to him because I push him like this, but if I had given up and started pampering him and doing everything for him, he may not be here today. I want to keep him as long as possible, so I love him enough to push.

I cared for my mother and father-in-law who had the disease also, so have dealt with it for years. I think it is wonderful to make people aware of diseases like this, so they will have some idea about it in the event it hits their family.


J4_Coltrain
before I read this thread I had no idea Terry Pratchett had alzheimers! I fully support the cause though, my grandpa has the early signs of it, and has already gotten lost about twice because of it. I will wear purple on May 25, for Terry, my grandpa, and the opther millions who have it.


Valenas

I am coming out of the bathroom, and I am trying to throw something away while opening the door. My attention on the location of the trash can, I realize that I am trying to push open air. I see an elderly woman holding the door open and giving me this odd look. I start apologizing because I am sure that I almost touched her head. "Give me a hug," she says. It was so abnormal that I got really scared so for some reason I found myself hugging her. Mid-embrace, she whispers in my ear, "I will pray for you." I start laughing, not to be rude, but because the situation was so awkward. I kind of realize that something is up though. So I walk out and see this guy staring at me. "She has Alzhiemer's." I explain to him why I had been laughing, even though people probably are in this situation all of the time.

"One day," he said, "She is going to hug the wrong person, and say that to the wrong person. She does that to everybody she comes in contact with, and quickly forgets." So, I ask, "She won't remember meeting me when she comes back out?" "Nope." She comes back out and she goes to him, and he says that we were just talking. She asks for a hugs again and once again, "I will pray for you." I ask how long, and he tells me that I wouldn't believe him. I tell him to try me, and he says eleven years. I ask him if he is her husband and he says yes. I ask how long they have been married, and he said fifty-three years. "If I asked her, how long would she say?" "Go ahead and ask her." So I did. "Thirty years." And then she hugged me and said her little saying. He said that they needed to be going, and she asked me, "Will you pray for me too? That way we can be friends?" And I told her that I would and she hugged me and they left.


J4_Coltrain
before I read this thread I had no idea Terry Pratchett had alzheimers! I fully support the cause though, my grandpa has the early signs of it, and has already gotten lost about twice because of it. I will wear purple on May 25, for Terry, my grandpa, and the opther millions who have it.


experienced angel
I have a great interest in this subject, having worked in the medical field for years and dealing with Alzheimer's disease in my family as well. My husband is an Alzheimer's patient. He is still working at this time, but we can see the day getting closer that we will have to have him retire. He is old enough to retire but also realizes that working is keeping him active and alert. Our fear is that when he retires, the disease will progress at a much faster rate.

He is on two medications, Aricept and Nemenda, to slow the progress of the Alzheimer's. These drugs work for some and not for others, so all you can do is try them to find out. We did notice, with him, he regained some of his thought processes. There is no cure, but there are medicines to help in the beginning if it is caught soon enough.

We realized this is what he was dealing with when he called me one day to say he didn't know his way home. This was a trip he had made for many years. I guided him home and immediately made an appointment with the doctor. After many tests, he was diagnosed. The neurologist said not to let him drive more than 10 miles, so we wouldn't have as much a chance of him getting lost. His job is within that range, so needless to say I worried, but after starting the the medications, this did seem to be a good range. Of course, until the medications built up I still received a few calls, but he hasn't had that problem for a while. I do have him drive me places from time to time, so I can assure myself that he is doing ok behind the wheel. I also got a phone with the walkie talkie on it, in case he has trouble using the phone. I take every precaution because you never know when this disease will take over. I do try to keep him dependant on himself, but also pay close attention to his abilities. We take it one day at a time.

Thanks to my friend Rosebud for leading me to this thread. I think it is a wonderful idea to share the information we have. You never know when it will hit someones family. It is like a medical bomb, when it hits, it hurts a lot of people. We know first hand.


Starrybun
My ( Great ) Auntie had Alzheimers it was really upsetting for everyone. We would go visit her everyday and she would always ask how was her mum. When we told her she had did years ago she would start crying and then ask it again the next day. Sadly she passed away not long ago from cancer just before christmas. I will wear lilac on the 25th may :]



Classical Teen
I support this thread entirely!

I hate it when people act as if they have Alzheimer's Disease.
Especially since my great grandma had it.

She died a year or two after she had it. I'm guilty again for not visiting her more often.
She didn't even know who I was or anything, she asked:"Who are you?"

I mean she was the one who taught me how to play piano and who got me into writing. . .



recordsatnite
I just happened across this thread and am very glad I did. Otherwise I'd never have known there was a wearing of the lilac!

My grandmother was diagnosed with Alzheimer's a few years ago. Thanks to the care of my grandfather and thanks to treatment the disease has been progressing fairly slowly giving us time to spend with her and time to understand what is happening to her.

I know it's been roughest for my grandfather. My grandmother was a woman who was always full of life and energy. She's always been a bit eccentric and has broguht a lot of fun and happiness to a very conservative, straight laced man. He's been taking care of her as best he can.

My grandmother has always been a warm, loving, and entertaining woman. To see her become timid and helpless is really hard.

Also, Terry Pratchett is my favorite author. He's had a lot of influence on some of my own writing.

So for my grandmother, and for Terry I'll definitely be wearing some lilac.


-Sgt-Marl-
hmm i will join in too i lost my grandmother to this last year it was really horrible to watch, in the end she didn't even remeber who my mom ( her daughter) was it was really sad so i would like to help too


Starai


        I think my grandmother suffers from that... She's convinced my name is Charlotte... not Kristen.

        It saddens me, because she doesn't wanna see people, she doesn't recognize. D; So I have to be Charlotte, to be remembered...

        I'll do my best to get everyone I know to wear purple~ heart


Xx lollipops_rainbows xX
I really hope people will be aware with this disease.My grandma, She just passed away a month ago...It's was really hard to see her suffer through this disease.I would always visit her. She forgot who I am, my name,our memories. EVERYTHING! I was so upset and sad.She died and she forgot everything we did together! We were very close. I was her only grandchild. We would knit with my mom,go to our farm together,watch TV.She used to live with us. So it's really hard to let someone go that near to you. I really hope people will be aware. And this is such a great thread! Starting from now I will try to wear purple! ^_^ But first I need to find some clothes sweatdrop


angelxe1
my great grandma had Alzheimer's during the last years of her life. She often didn't know who i was and I would just go along with it so she felt like she had many visitors in one day.


Aiswen
This disease is very tragic. I lost my grandmother to it a few years back, toward the end she'd always keep telling people that she needed to buy her youngest daughter (Who would have been in her fourties at the time if she hadn't died.) some new clothes for school. I really hope they cure this in the future, so nobody else will have to see their family members go through this.


Amaranth_the_ immortal
As many as 5.3 million people in the United States are living with Alzheimer’s.
This is an illness that effects everyone in some way, we all feel the pain it causes. Whether it is a family member or a friend chances are some one you will meet or know will be afflicted with the Alzheimer's disease.

I and my family are currently suffering because of the horrid disease. My grandfather has had Alzheimer's for about three or four years. He no longer remembers who my siblings and I are or even who my mother is, his own daughter. and now it is to late for the doctors to do anything for him, he is to far for any treatment that would slow it or lesson the symptoms. Now all we can do is be there for him and pray.

But it's not to late for our future we can still fight. We must take a stand and support the research that will one day obliterate this debilitating disease.


Megg xXx Lycan
Ahh, this is a good thread...
Brings out awareness...
My own Great-Grand-mere had alzheimers, it was painful to say the least...
We lived overseas and so we would always send her post-cards from our travels, and she would always place them by her bed.
We finally had the chance to go see her, we knew she wasn't doing so well.
When we got there... well, she remembered who we were, but...
not the rest.
She knew that we were her great-grand-daughters, her grand-son and his wife,
but nothing more.
She always kept asking us: "No Son?"
She couldn't seem to remember if we had a brother or not.
But she had all of our pictures up, our names scrawled across the back.
It was a long day, with many conversations.
She passed away only a few hours after our departure, perhaps she was waiting to say goodbye to us?
But the most painful part... was that she could remember almost nothing,
only names for a few random faces.
I wish for nobody to have to go through the same experience,
Because to know that someone had died,
someone close to you,
and couldn't remember who you really were,
is one of the most painful things ever...


Ikuzou23
My grandmother had Alzheimers, she passed about a week ago..

rest in peace dear grandma.. Im going to miss you.. cry


Blood Princess Lorraine

I have a great grandmother who was really happy and so as her family when she still had her memory. Her dogs were used to be fat. her house used to be organized. And her big house used to be clean. She's living in the mountains happily with some of my relatives taking care of her. She was really active and all funny as long as I can remember. And my Great Grandmother is the only one who has the territory of the family. But when she had Alzheimers everything changed. My relatives left so another set took care of her but not so much well as before. Her dogs died but some still alive but as thin as bones. Her house is all dusty and the lot is all leafy the poultry was gone. The well I used to watch also disappeared and I couldnt stand to watch her be that way since there was no cure. It's like she never existed. When we gave her some mangoes she even forgot who to eat them she dropped them even almost ate they peelings. And when we were leaving she wouldnt et go of me saying Let's Go Home it's dark and with a false name. I couldnt do anything but cry inside of the pain. Now that Im back to the city I dont know what's her situation there in the mountains but all I know her memories would still remain forever.


iiPokerface
My aunt that was very close to me died with this deisese,

when i went to see her she didnt even know my name.

im glad to support.


firethief17
I love my Great-Grandpa very much. He would always tell us stories of my Papa as a kid and about how he was a radio controller in WWII. Around 4 years ago he was diagnosed with this awful disease. I hate Alzheimers with all my being.

It kills me knowing that everytime I see him, he forgets me a little bit more.


Melosta
My grandfather had Alzheimer's. It was very sad to watch. It did hurt to see him not only mentally deteriorate, but physically as well. He was eventually confined to a chair.

Our first clue was an accident he got into when I was in college. My dad took away his car after that. The next clue was when he went for a walk and we couldn't find him. I think it was one of my other aunts that found him, about 10 miles away from his house. He went for a walk and couldn't remember how to get home. At first, my dad and aunt (his children) hired a live in nurse to stay with him. Unfortunately, he got to the point where we had to put him in a home to keep an eye on him better.

The funniest memory I have of him in this state was when we had the live in nurse, he would get up in the middle of the night. One time he got up, ate all the bananas. When they got up in the morning, he accused her of eating them all.

My aunt (his daughter) took it the hardest. She was very active in visiting him at the veteran's home and with a group they had for wives and family members of residents.

He eventually died of stomach cancer. I can only assume the reason they didn't find it is because he was so far gone by this time; he barely recognized anybody and would mumble constantly, he never told the nurses he had any pain or something along those lines.

I certainly hope that a cure is found. Adult stem cell research seems to be the most promising. I hope they keep taking that route instead of the other alternative 'deadend' research. God bless all those affected by family members living with this disease as well as those individuals suffering with the disease themselves.


Fullmetalonion
It's great this thread exsits and was featured.
My Grandmother from my Dad's side has alzheimers.
My living Grandfather from my Mum's side has Alzheimers.
My Dad himself is showing signs of it.
My Grandad who passed away had Parkinsons on set dementia.
I hate the disease.
The saddest thing was at my Grandad's funeral my Grandmother didn't remember him.


eludmix the dark
It's never easy to say goodbye, but even more so when it takes a long time. My grandmother has altzheimers, or whatever the infernal thing is! All I care about is how she's doing right now. She's said and done things she hasnn't meant, including slapping my sister. I'll do whatever, if it has a chance to help my grandmother. Sometimes she even asks where my Grandpa is, and he died a year ago. This who mess started at aroudn that time, and it seemed small then. But now, it's so much worse. It makes me want to cry, especially since it's not the real her that does these things. It's the fake her that does the horriblle things. Not long before I went to visit her, she had stolen something from a store. I'm young, and it's hard to say goodbye no matter what. But, whenever it's a rolemodel, or someone you love, it's painful to.


Charlydateddybear
Oh~ This is so lovely.

My grandmother has Alzheimer's- she was 62 when she was diagnosed and it's been 3 years. This past December, we found out she had breast cancer. Right now she's going through chemo and doing her best, but it's really, really hard. She had to be moved to a private nursing home and has been having some really violent fits of anger lately. Just last night she almost assaulted one of the other residents for absolutely no reason.

It's a little frightening- my grandmother is a sweet, gentle woman with a bit of that southern spice, but not enough to get this violent....and then, when she forgets three minutes later, and asks why everyone is being so wary about what they say....*sigh*
I miss who she used to be, and I'm scared for what she's becoming. heart

It's surprising and a little upsetting how little people know about this awful disease. Thank you SO much for bringing this to Gaia.


I will do my best to do what i can to help. i hope we help those who need help before its too late.
 
     
 
Very very pretty color biggrin I totally will
     
Angel princess Katerina
0X0BOOM0X0
heys, why don't we try makin our aquariums purple?

ninja fish
jellyfish
pebbles
backgrounds
sharkfin fish thingies
and other stuffs!
.

thats a good idea and oour profiles too! i don't have enough gia cash to make my awuarium purple 3nodding


hey we are talking about peoplses lives here not ur fish even though they are also important and beautiful we are not talking about them. do something good for some one for the first time in your life. geeez. girls these days they can't help ppl in need.
 
     

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